← Return to Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

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@kippi1950

That is a helpful summary of your illness history. Encouraging without downplaying the challenges.

2 questions:
1. did you experience nausea or diarrhea after the finalization of the chemotherapy? If yes , what supportive measures were taken?
2. Did the CNS lymphoma effect your leg and hand functioning? If yes did Physiotherapy alone improve your condition and how long did it take to partially or even fully recover?

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Replies to "That is a helpful summary of your illness history. Encouraging without downplaying the challenges. 2 questions:..."

I also received Zofran after the MTX. I was on many medications including an antibiotic and an antiviral medication. I think it was the combo of the medicines and you never knew how your body would react. I can’t recall how many days after the MTX, I had to do the oral chemo (Temador). My body was already worn out, and it was just a pile on top of that. OTC meds such as Imodium -D and Metamucil.

I was highly impacted after my brain biopsy. I could not hold a sandwich, use utensils and listed to the left when I would walk. While at Mayo, I had both OT and PT. Everything cleared up with time. If you met me today, you’d never have a clue that I had been so sick. I will say after my almost year of treatments, I had to work on balance a lot. I started with a personal trainer that helped me immensely after I was done receiving treatments.

I did want to comment on something @kippi1950 said about oncologists not using the word cured. At Mayo, they did use the word cured. After being at Mayo, I had to return to my home state and receive treatment by a doctor Mayo conferred with in advance of my return. At my 5 year appointment, she said that you are only cured when you die of something else. I now just say I hit my 5 year mark of being Cancer free. I do think I’m cured of CNS Lymphoma. It’s clear to me that I could develop any other kind of Cancer as anyone can. After you spend a ton of time in the hospital and at a Cancer Center, it’s apparent that Cancer does not discriminate.