Prednisone Taper Stories

Posted by pah17 @pah17, Feb 16 12:03pm

I will be under the guidance of Rheumo to taper Prednisone which is presently 14 mg down from 15 mg. We tried the fast track of 12.5 mg x 3 days, then 10 mg. Symptoms returned. Tight glutes, pain down back of thighs and behind knees along with several hours of morning stiffness and limited mobility. I'd really like to get an idea from those who have successfully tapered if the goal is to be pain-free as opposed to a manageable level of pain or maybe somewhere in between? I'm 73 and I do not have a history of pain or mobility issues. And I was pretty limber. It's new to me to have to struggle to bend to pick up something off the floor. I do have a fair amount of pain at night while trying to sleep, mainly in one hip. And it seems that PMR has heightened my existing neuropathy symptoms.
I will say that none of this is as bad as it was when I went to my PCP for help. I'd appreciate hearing your stories.

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Profile picture for gypsyrozbud @gypsyrozbud

I am relatively new to PMR. Diagnosed finally in May 2025 after suffering for 6 months, seeing endless healthcare providers, chiropractors, physiotherapists, acupuncturists, massage therapists, even an osteopath!
I had immediate relief upon taking 15 mg prednisone although I still had some pain, it was at least bearable comparatively. I carried on thinking that some pain was inevitable and tapered as instructed by my family doctor by the time I got to 5 mg the pain became unbearable once again. Went back up to 10 mg
and started feeling better than I ever had! FTER 2 months of being pain free I have tried to taper by .5 mg but now cannot psychologically handle the pain and am back up to 10 mg.
I do not have a rheumatologist, my doctor is closing his practice and I will no longer have a primary care physician which is causing me some stress to say the least!

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@gypsyrozbud you do not need that stress. Go easy. You will find a new one.

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