POTS Diagnosis with coinciding illnesses

I'd like to invite @azurite, @kthweatt, and @welchllb to this discussion as they have all discussed a POTS diagnosis on Connect and may be able to share their experiences and other diagnoses with you.

@dart0207, have you been diagnosed with POTS?

I have not been diagnosed with POTS but am in the testing stage for it. I have had a positive tilt table test with a local cardiologist but they can not find any issues with my actual heart to explain my passing out and light headedness/ dizziness and my sudden spikes and drops in blood pressure and heart rate. I have an appointment in a week with Mayo's fibromyalgia clinic because I was diagnosed with that 20 years ago. The POTS clinic also reached out to me based on my symptoms to come see them in the middle of July. But at this point I feel like both of these things are problems of some other underlying cause, such as an autoimmune disease or a nervous system problem of some sort.

Dart, You say "But at this point I feel like both of these things are problems of some other underlying cause, such as an autoimmune disease or a nervous system problem of some sort."
I think you nailed it with autoimmune. Autoimmune issue can cause autonomic system issues. POTS is a symptom not necessarily a primary illness. Same for fibromyalgia. Fibromyalgia is a hodge podge of varies symptoms and often times are just thrown into the pot (pun not intended). I was misdiagnosed twice with tick borne (lyme and bartonella) diseases and thrown in for good measure was fibromyalgia and chronic fatigue syndrome. Western medicine's biggest failure is autoimmune illnesses that can be cause by a host of various viruses and bacterial and or fungal infections. Chronic long Covid has kicked that giant door held in place resistant MDs to who fail to understand what it means to diagnosis. MDs always seem to think they need to come up with a diagnosis even if they are clueless.

Hi, I have been diagnosed with POTS - right on the borderline of positive. I started taking Mestonin - 30 mg a day in September and called the turn around a miracle!! HOWEVER, the beginning of March, I started to have "break through" symptoms - SOB, legs like lead/jelly, brain fog, fatigue, PEM, etc. They have gotten worse to the point of questioning what I can now do without ramifications that set me back for at least a day. My Neurologist scheduled me for an EMG to investigate Myasthenia Gravis. She doesn't want me to increase Mestonin or try anything else until the results are in. In the meantime, I heard about someone with similar symptoms that is trying the 7 mg Nicotine patch with amazing results. Anyone else heard of this treatment for LC? Perhaps, I should start a new thread about Nicotine?

POTS here. I have been to 10 doctors in different specialties. My neurologist thinks it is long vaccination syndrome. That's the only thing that changed for me. I got pots within 90 days of having a Tdap vaccination. That was a year after having the Pfizer covid vaccine (original 2 doses). I didn't feel great after covid vax, but not a big deal. My life was destroyed after the Tdap vax. Neurologist thinks the covid vax teed me up and the Tdap vax knocked me out of the park. 2 years later is has gotten better, but I'm still not 100%. Prob 85%. I have good days and bad. Neurologist said if I was exposed to virus again, symptoms could come back. I was and they did. Not as bad this time.