Post lumbar spinal fusion with nerve pain in knee/leg

Posted by shelly1228 @shelly1228, Dec 3, 2024

Hello! I have scoliosis and in July had lumbar spinal fusion. Since the surgery my radicular pain in my right leg is gone but I now have what doctors call “healing nerve pain” in my left leg/knee. I am four months post op and this is not getting better. I have been on Lyrica now for three months. It seems the lyrica is losing effectiveness and sometimes gives me no relief at all. Looking for anyone with a similar experience that can give me some hope that this will get better or I suppose I need to start to realize I will just have to live with this. Also looking for other suggestions besides meds to help with nerve pain. Thank you!!

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My Neurologist first put me on Gabapentin. It kept me up all night long and did nothing for the Pain.
As a last resort (didn't want surgery) we tried Tumeric. I take Quanol Tumeric (Orange Box). It is absorbed
and works like magic. I take two daily since 2022. I also have been on Osteo Bi-Flex for knees since 2014.
Take the box with the Green strip that says Tumeric. That is the Pharmacist's instruction. It works like magic.

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L5 - S1 fusion 11/17,taking gabapentin,dialudid,Valium,Tylenol but leg pain is 7 to 8 every night. Am doing exercises as directed. Took 5 day prednisone to relieve inflammation but severe pain persists
Dr believes at this point,my pain is to be expected. What other ideas exist for me? Follow-up x-ray 12/29.

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Profile picture for countzeller @countzeller

L5 - S1 fusion 11/17,taking gabapentin,dialudid,Valium,Tylenol but leg pain is 7 to 8 every night. Am doing exercises as directed. Took 5 day prednisone to relieve inflammation but severe pain persists
Dr believes at this point,my pain is to be expected. What other ideas exist for me? Follow-up x-ray 12/29.

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Im having same but mine is in arm..im on the prednisone third day its,working but im worried when it ende. My surgeon says not nerve pain maybe gout after surgery which can happen ..also I woke up after surgery with no eyesight in left eye! my surgeon has done over 2000 abd never seen this. no stroke..clot. eye specialist says everything normal. I go back too eye doctor December 15..praying my sight returns.

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Profile picture for countzeller @countzeller

L5 - S1 fusion 11/17,taking gabapentin,dialudid,Valium,Tylenol but leg pain is 7 to 8 every night. Am doing exercises as directed. Took 5 day prednisone to relieve inflammation but severe pain persists
Dr believes at this point,my pain is to be expected. What other ideas exist for me? Follow-up x-ray 12/29.

Jump to this post

I had severe leg pain after S-1 L5 fusion, where both legs felt like lightning bolts were shooting down to my toes—horrible pain. I spoke with my surgeon, who finally agreed for me to continue with Epidurals. That was three years ago, and I continue with pain, though not as severe. It is now more of a constant burning sensation. The epidurals are my lifesaver.

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This is kind of an old thread but I wanted to ask you what does your ridicular pain feel like? I have throbbing in my calf muscles after I walk even just a few steps. I had a laminotomy with no fusion and my symptoms returned after 4 months. The surgeon said it was the nerves re-enerating whatever that means. Sounds similar to what you're being told that it's the nerves healing? Mine never got better and it's a year and a half later so now they're telling me I need fusion but I'm concerned that nerve pain will not be helped by fusion. How are you now after more time has passed.?

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I had back surgery in March this year. Fusion L3and L4 with a spacer. Surgery went well. I was hoping it would relieve the back and calf pain , yes calf pain, but it did not. I'm walking with a cane now and am not giving up. Surgeon suggested B12, Alpha Lipoic Acid and Magnesium for my nerve pain. My daughter found this Pain Academy on YouTube and podcast on Spotify. This person broke his back surfing and for years even after the back healed, he still had severe pain. He went on to do a lot of research and he finally figured wlit out....out head and our body are not communicating as they should. Even though put scans and MRI/X-rays showed the body is heal , our nervous system still remembers the pain. Our mind has to unlearn this sensation. Do you think this make sense?

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Profile picture for loriesco @loriesco

yes, I woke up from surgery with a feeling like a screwdriver was stuck in my foot. It finally dissipated after a couple years. Weather makes it worse. No one paid attention to it. (doctors). After 5 years its pretty resolved but replaced by severe outside shin burning. My sacral joint hurts, my outer hip. I go for MFR and the pain completely goes away. And when I get an injection in my butt with NSAID. I am coming to the conclusion that only physical exercise/stretches will keep the nerve pain at bay. whether it is chair, yoga, stretching in the doorway and stretching out my lumbar piriformis. I use a lot of topicals like muscle rubs, diclofenac 3%, lidocaine 5% and more. I'm looking at another lumbar surgery but beginning to think its a dysfunctional piriformis disorder for 25 years which gets ignored and under dealt with. If it is, then good news is no surgery but bad news is the only REAL remedy will be stretching it out and periodically using a strong anti inflammatory. Yes, scar tissue needs MFR but you will have to wait until you are further along. A lot of healing - nerve healing takes 1 -4 years. Still changes for me in year 6!

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@loriesco thanks for your input. I'm curious about your NSAID injections. I believed all the pain injections I had in my butt had steroid. Unless youre meaning it's a Botox type med to release muscle tightness in the piriformis?

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Profile picture for jbapaints394 @jbapaints394

@loriesco thanks for your input. I'm curious about your NSAID injections. I believed all the pain injections I had in my butt had steroid. Unless youre meaning it's a Botox type med to release muscle tightness in the piriformis?

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@jbapaints394 There are things beside steroid! NSAID isn't steroid and it isn't botox! And yes, I had botox. Great stuff! Insurance covered it!

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