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C Diff
I first got sick on May 1st thinking it was the stomach flu. I weight 157lbs and every er that I went to told me to sleep it off and that the longest it could last is two weeks. Two weeks later no difference. I finally saw a gastroenterolgist sometime in June. At that point it was 1 month of no appetite, nausea and diarrhea with tons of mucus(sorry to be so graphic). I did a stool test and he said I had inflammation somewhere and to eat bland and it would go away. It didn't so finally he said I could have Giardia due to having yellow poop since march 🙁 so he put me on flagyl and ciprofloxacin. I guess I put all my eggs in one basket and hoped and prayed that would be it. I started feeling better until one day after I ate I had the urge to throw up. No nausea or anything. Finally had a colonoscopy on June 19th. Got diagnosed with C. Diff colitis. He put me on flagyl three times a day for two weeks. I had my good days and bad days. Fourth of july came around I had a hot dog and pasta salad and that's the last day I ate something delicious. Since that day I've felt horrible. I finished my antibiotics that Saturday and I've become worse. All I taste is blood now. Anything I drink makes me want to throw up. I have to sleep sitting straight up :(. I'm miserable and I currently weight less than 120. So to go from 157-120 in a matter of two to three months is taking its toll on my body. I'm losing hope. I'm 22 years old and Monday April 30th was the last time I was actually happy. If anyone has information or anything to help me please respond. I know I could have something way worse but to go from being perfectly healthy to being labeled anorexic because you want to eat but you can't is really hard. I'd love to hear other peoples stories on this horrible infection.
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Did you try to see an infectious disease specialist? They are best at treating Cdiff and advise if you need further treatment. I have never done a PCR myself just the regular toxin test so I am not sure what is the difference... please keep me posted on what you decide.
atypical c. diff occurs without the well-known watery diarrhea but patient has nausea, lower left quadrant pain, and fatigue. There's also asymptomatic carrier of c. diff
SINCE FEBRUARY I HAVE BEEN DIAGNOSED WITH POST INFECTIOUS IBS AFTER VERY SEVERE CDIFF.8 WEEKS OF VANCO. 2 WEEKS OF DIFICID AND VOWST THE POOP PILL, FECAL TRANSPLANT PILL. IT WORKED, HOWEVER NOW IM LEFT WITH TERRIBLE LOWER PELVIC PAIN. MDS GAVEME THIS POST INFECTIOUS IBS AND SAID IT CAN TAKE WEEKS OR MONTHS BEFORE IT SUBSIDES . DOES ANYONE HAVE THIS.
My son has been diagnosed with post infectious ibs c and has been in misery since February. They put him on rifaxan, nortriptyline and now he's taking linzess. Nothing has helped. I want them to do a fecal transplant on him but nobody seems to listen or want to do that. Tell me more about the fecal pills.
ITS CALLED VOWST . ITS A PILL YOU TAKE 4 OF THEM 3 DAYS IN A ROW. HOWEVER THE PREP IS TERRIBLE. TASTE GOOD, BUT YOUR STOMACH IS RUMBLING FOR DAYS AFTERWARD. YOU HAVE TO HAVE A GASTRO DOCTOR ORDER IT. YOU HAVE TO FIT THE PROTOCAL. MUST HAVE HAD AT LEAST CDIFF TWICE. THE COMPANY IT COMES FROM IS AMBER SPECIALTY. THERE NUMBER IS 877-703-3647. HOWEVER ITS $17.000 FOR 12 PILLS, BUT IF YOU FIT THE PROTOCAL. IT IS FREE. GOOD LUCK
Does that mean it never comes back?
NO SUPPOSEDLY IT PUTS A BLANKET OVER IT, HOWEVER IF YOU GOT IT FROM ANTIBIOTIC, AND TAKE ANTIBIOTIC AGAIN, IT CAN REACTIVATE. YOU WOULD HAVE TO ASK YOUR GASTRO DOCTOR.
I’m new here. I had my first bout of c-diff June 3rd 2024 and was in the hospital for 5 days and so sick. I took vancomycin for 21 days along with Florastor. I had a colonoscopy on July 3rd and everything looked good.
Friday July 12 I woke up with the yellow, mucous, stinking diarrhea. Dr ordered stool test and it’s positive. I’m doing a Vanco taper and my dr wants me to have an Zinplava infusion.
This disease messes with your mind causing severe anxiety. I’m now on an antidepressant because I just can’t handle it anymore.
If you research it there is a connection between your mind and your gut. When your gut is out of whack it affects your brain.
I feel so bad for every person who deals with this disease.
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4 ReactionsOnly true treatments for c-diff are vancomycin and dificid.
I've had two treatments of vancomycin and one treatment of Dificid. My stool has still not returned to "normal" according to the Bristol Stool Chart. Does it ever return to normal?