1. < Post-COVID Recovery & COVID-19

Anyone experiencing post covid heart issues?

Posted by emilycoop03 @emilycoop03, Aug 2, 2022

hello,
I am 19yrs old and have had Covid twice, once at the start of the year 7th Jan and recently 8th of July. I am finding now i have some symptoms of POTS but am not sure. my resting heart rate is around 60-72bpm but when I stand up it increases to around the 120bpm mark, my head also gets tight and I feel very dizzy and fatigued. my blood pressure however is high. normally i am healthy and active but when going for a walk my heart rate reaches nearly 160pbm and get out of breath fast. i do also get sharp pains around heart and chest area. has anyone else experienced this? or know what it could be? thankyou:)

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

britelite | @britelite | Sep 3, 2023
In reply to @lenchiksf "I am wearing Zio by iRhythm for 14 days, this is just another brand of holter...." + (show)
@lenchiksf

I am wearing Zio by iRhythm for 14 days, this is just another brand of holter. I have 3 more days to go! Although my heart rate goes up and down to 40s and 50s during day with activities; in 60s at night. Anyone else experiencing low heart rates ? I am 3.5 months post covid. I do get very tired and need nap mid day and get lightheaded walking around the house. I wear Withings scanwatch

Jump to this post

To lenchiksf - sorry my reply is so late - just came upon this heart discussion group. It’s been a year since you posted. I’d be interested in knowing how you’re doing.
I had a mild case of covid in Feb. ‘23. Had all the vax’s and took Paxlovid. Since then, I’ve been short of breath. Then my heart started acting up. When I went for a walk, my heart rate would slow down instead of accelerating and would become irregular. In April, saw a cardiologist - took EKG and did 24 hr. Holter monitoring
Both showed some irregularities but nothing conclusive. SOB now constant. In May, felt terrible, went to ER and diagnosed with complete heart block. Cardiologist said he hadn’t seen much data that it was due to long covid. Anyway, the next day I had a wireless pacemaker implanted. It’s new technology but unfortunately it didn’t work for me and in August, had to have a traditional dual chamber pacemaker implanted. Sometimes pacemakers cause atrial fib - well, that’s me! Now I’m on blood thinners, then had episode of congestive heart failure and needed diuretics. Wonder what’s next in store for me! So that’s my journey with slow heart rate. Don’t know if heart block was something I was trending toward (I’m 78) but before covid, I was a healthy, active senior. Hope you’re doing ok now.

REPLY
1 reply
lindadale | @lindadale | Sep 4, 2023

18 months post covid, now a long hauler, when lying down my heart races and i can feel my pulse in my legs and feet, in July I had 3 episodes of shooting pain up from my chest to my jaws. Lots of tests but no blockage in my limbs. A new cardiologist put me on a list for a coronary angiogram that has a 6 month wait list. My original cardiologist said my heart is fine but that bone and muscle in my chest are inflammed and causing symptoms.

REPLY
1 reply
lenchiksf | @lenchiksf | Sep 4, 2023
In reply to @britelite "To lenchiksf - sorry my reply is so late - just came upon this heart discussion..." + (show)
@britelite

To lenchiksf - sorry my reply is so late - just came upon this heart discussion group. It’s been a year since you posted. I’d be interested in knowing how you’re doing.
I had a mild case of covid in Feb. ‘23. Had all the vax’s and took Paxlovid. Since then, I’ve been short of breath. Then my heart started acting up. When I went for a walk, my heart rate would slow down instead of accelerating and would become irregular. In April, saw a cardiologist - took EKG and did 24 hr. Holter monitoring
Both showed some irregularities but nothing conclusive. SOB now constant. In May, felt terrible, went to ER and diagnosed with complete heart block. Cardiologist said he hadn’t seen much data that it was due to long covid. Anyway, the next day I had a wireless pacemaker implanted. It’s new technology but unfortunately it didn’t work for me and in August, had to have a traditional dual chamber pacemaker implanted. Sometimes pacemakers cause atrial fib - well, that’s me! Now I’m on blood thinners, then had episode of congestive heart failure and needed diuretics. Wonder what’s next in store for me! So that’s my journey with slow heart rate. Don’t know if heart block was something I was trending toward (I’m 78) but before covid, I was a healthy, active senior. Hope you’re doing ok now.

Jump to this post

wow, you have had a lot. take it easy !
I am back to normal. I had 2 weeks "hotter" type. these just have better time over time, then 24 hrs. whenever you need monitor next time, consider asking for two weeks (sometimes these are put for even a month )

REPLY
1 reply
britnoor | @britnoor | Sep 4, 2023
In reply to @lenchiksf "wow, you have had a lot. take it easy ! I am back to normal. I..." + (show)
@lenchiksf

wow, you have had a lot. take it easy !
I am back to normal. I had 2 weeks "hotter" type. these just have better time over time, then 24 hrs. whenever you need monitor next time, consider asking for two weeks (sometimes these are put for even a month )

Jump to this post

I also am a long hauler with covid and heart problems. Taking blood pressure meds as my bp went so high. One week in ICU in Jan. 2021. Since then have fatigue and tingling and numbness in half of my legs. prior to this I had a ton of energy and always on the go. I hate being like this. I am a little bit stronger now but not where I want to be. Covid did a number on me. I just wish my bp would settle down. It still fluctuates at times. I used to have low bp and then it went crazy high with covid. It is nice to be able to discuss with others in same boat. Hope you all are getting better.

REPLY
misslauren | @misslauren | Sep 5, 2023

I too have unstable BP. I've been on 2 meds with no results. My BP is at stroke level. It all started with the Covid shot. Wish I would have never got it. Lost over 20 pounds and have so too many symptoms to mention.

REPLY
hikerguy62 | @hikerguy62 | Oct 19, 2023
In reply to @denglish19 "There is a Facebook group with 90,000+ long haulers in it from around the world, if..." + (show)
@denglish19

There is a Facebook group with 90,000+ long haulers in it from around the world, if you're interested in talking to others and hearing what has worked. Many people have done well with a low-inflammation, low-histamine diet. It helps relieve your body of that constant immune response. There are other simple protocols that work well too -- not just a prescription given for symptoms (not actual treatment of the root cause). Hang in there! It does get better. But be sure to be moderate with physical activity and exposing your immune system to anything new, that your body may react poorly to.

Jump to this post

I have a friend going through this. Can you provide the name of the FB group you're referring to?

REPLY
1 reply
denglish19 | @denglish19 | Oct 19, 2023
In reply to @hikerguy62 "I have a friend going through this. Can you provide the name of the FB group..." + (show)
@hikerguy62

I have a friend going through this. Can you provide the name of the FB group you're referring to?

Jump to this post

I just tried looking for it and I'm not sure it exists anymore. (The worldwide group with 90,000+ followers.) It was one of the first and only long haul groups about 2 years ago... But there are a TON of FB support groups now, and all seem to be sharing advice for what helped. Sorry I can't provide the original group info... Happy to help your friend though, if he needs support/advice.

REPLY
hikerguy62 | @hikerguy62 | Oct 19, 2023

Thanks for that info. I'll see if he can't find some of those FB groups you're referring to. I just posted for him if you want to look at what's going on with him:

https://connect.mayoclinic.org/discussion/posting-for-a-friend-with-a-racing-heart-problem-covid-related/
REPLY
dianeban | @dianeban | Oct 21, 2023
In reply to @rinadbq "I was a very healthy, active person before COVID, then started the same symptoms about 1..." + (show)
@rinadbq

I was a very healthy, active person before COVID, then started the same symptoms about 1 month after infection-that was 1 1/2 years ago when there was little research available to doctors. Finally, I got a '21 day Event Monitor' order from my PMD; a holter monitor is for too short of a time. It was the final evidence of 'Inappropriate Tachycardia'-a heart rate disproportionate to my activity. My cardiologist tells me he is seeing this a lot with his covid patients, and not necessarily those who were hospitalized. I am now on Metoprolol for heart rate control. There is a lot of information on nih.gov, the National Institute of Health; look under COVID and Tachycardia (fast heart rate). There are several possible diagnoses-POTS is certainly one. CDC's website also has great info-you are not alone.
I kept a daily journal, documented my activity (walking at slow, normal, fast rate, climbing stairs, towel drying after a shower, laundry/folding sheets, at rest, getting up and walking after sitting) and heart rate to show the data to my PMD. My heart rate went to 150 washing my hair!! My EKG, Stress Test, Echocardiogram, a test that had me riding a bike and hooked to a monitor.... were all "normal". I am an ER Nurse with 40 years of experience and ran a half marathon for my 60th birthday. I have a lifetime of knowledge about heart rates. It took a LOT of persistence to get the Event Monitor which objectively confirmed the symptoms.

Jump to this post

I have been on oxygen since having covid January 2022. Low hemoglobin levels in turn upon exertion pulse rate goes high 160 low iron since covid also treated with blood and iron infusions as temporary. I had covid pneumonia but never was given an antibiotic and also affected neurological and rehab hospital for 2 months after covid unit. came home on oxygen still on oxygen.

REPLY
bmd | @bmd | Oct 22, 2023
In reply to @lindadale "18 months post covid, now a long hauler, when lying down my heart races and i..." + (show)
@lindadale

18 months post covid, now a long hauler, when lying down my heart races and i can feel my pulse in my legs and feet, in July I had 3 episodes of shooting pain up from my chest to my jaws. Lots of tests but no blockage in my limbs. A new cardiologist put me on a list for a coronary angiogram that has a 6 month wait list. My original cardiologist said my heart is fine but that bone and muscle in my chest are inflammed and causing symptoms.

Jump to this post

I’m sorry you and everyone here are experiencing these debilitating symptoms. I am 20 months post covid since first infection and 8months since second. Palpitations had gotten better at some point but now back with a vengeance. I’m also having difficulty breathing when lying flat on my back. Raising my head helps.
Anyone else experiencing this? Also, insomnia is worse than ever. All tests so far have resulted in negative results. Frustrating. Feel better, everyone.

REPLY
View MoreView Less
Please sign in or register to post a reply.