1. < Traumatic Brain Injury (TBI)
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Dealing with Post Concussion Symptoms One Year Later. Suggestions?

Posted by fightingfibro0505 @fightingfibro0505, Jun 11, 2023

Hey everyone! I suffered an injury one year ago and I am still having concussion-like symptoms; migraines, slight vertigo, light sensitivity, eye pain, dizziness, lack of coordination, and severe fatigue. I have no clue what is going on.. it’s different than chronic fatigue or anything like that. Does anyone have a good suggestion or idea???

All my scans are clear too!

Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.

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Moderator
Lisa Lucier, Moderator | @lisalucier | Oct 14, 2025
In reply to @rachelmc7ey "Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in..." + (show)
Profile picture for rachelmc7ey @rachelmc7ey

Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

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Hi @rachelmc7ey - welcome to Mayo Clinic Connect. Three concussions is a lot. I had one that took me a month to recover from, and that was a lot to deal with. I can't imagine.

When you say you are struggling quite a bit, can you share a bit more about what you are struggling with (e.g., screens, headache, bright lights)?

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rachelmc7ey | @rachelmc7ey | Oct 11, 2025

Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

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swimman1 | @swimman1 | Aug 20, 2025
In reply to @lisalucier "Welcome to Mayo Clinic Connect, @swimman1. I moved your post here so you could chat with..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

Welcome to Mayo Clinic Connect, @swimman1. I moved your post here so you could chat with others who've discussed post-concussion syndrome.

Will he get a chance to visit with the neurologist before starting school for the year? What are his feelings about the post-concussion syndrome and managing his symptoms at school?

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His school has already started this week. We are planning the neurologist visit in the next week or so. Today is his 3rd day of the school year and he is showing some depression, as it was a struggle for him to get out of bed. We are trying to be positive for him and have him discuss his day and share his feelings with us at dinner.

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Lisa Lucier, Moderator | @lisalucier | Aug 19, 2025
In reply to @swimman1 "Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been..." + (show)
Profile picture for swimman1 @swimman1

Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

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Welcome to Mayo Clinic Connect, @swimman1. I moved your post here so you could chat with others who've discussed post-concussion syndrome.

Will he get a chance to visit with the neurologist before starting school for the year? What are his feelings about the post-concussion syndrome and managing his symptoms at school?

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swimman1 | @swimman1 | Aug 19, 2025
In reply to @whiteseld "Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom..." + (show)
Profile picture for whiteseld @whiteseld

Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom mtgs?Thanks in advance!

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Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

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Lisa Lucier, Moderator | @lisalucier | Aug 11, 2025
In reply to @maryjaneevelyn "Our 16 year old daughter ran headlong into a metal support beam in the dark, full..." + (show)
Profile picture for maryjaneevelyn @maryjaneevelyn

Our 16 year old daughter ran headlong into a metal support beam in the dark, full speed, three months ago. She hit it across the face , directly over her nose and mouth. She suffered a concussion, whiplash and passed out for a "moment", had severe tooth pain in many teeth for weeks ( thankfully tooth pain has totally subsided), had a lot of bruising inside the mouth and around her nose, thankfully no broken bones, experienced dizziness and nausea at first, and severe headaches. They did a CT scan at the ER. She came out clear with that, thank God. We took her also to the chiropractor, and many times since. Our chiropractor has now mentioned the term "Post Concussion Syndrome" to us, after 3 months post injury, referring her to a neurologist clinic, which we are waiting to hear from. Our daughter has slept a LOT over the past few months, especially the first many weeks. Her symptoms have subsided mostly, but she continues to have headaches, every day, since her injury. Not constant, but comes and goes. We don't even know what brings them on. She cannot run or jog or even go for a brisk walk without getting a headache from the jarring of her head. We've had a lot of prayer for her and we'll continue in that, praying she continues to heal. We never anticipated these headaches to continue this long. We hope our insurance will cover what she needs, although we have no idea what that means. This is totally new to us and unexpected with her recovery. Hoping for some answers, and soon. She remains tired as well. ❤️‍🩹

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Hi, @maryjaneevelyn - just wanted to check in with you and see how things are going with your daughter who ran into the metal support beam?

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bestspurs2468 | @bestspurs2468 | Aug 5, 2025
In reply to @mrhodes "I'm wondering if anyone has experience with, or has learned about, a recurrence of PCS symptoms..." + (show)
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I'm wondering if anyone has experience with, or has learned about, a recurrence of PCS symptoms well after the initial injury and concussion and after what felt like a "full recovery."

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I have experienced and still am exactly what you have described.

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gregd1956 | @gregd1956 | Jul 28, 2025
In reply to @whiteseld "Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom..." + (show)
Profile picture for whiteseld @whiteseld

Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom mtgs?Thanks in advance!

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Thx all,
Dear @maryjaneevelyn you are a member of TBI. I am there and today is 13 years. I’m glad - to all - are alive this moment. I’m sorry for those have ended. I’m glad is members and helping all of you.

Some of us has”needs” (not problems). I am alive with my families/friends/brothers-sisters (ay my church)/members of this.

I’ve lost 80% of my brain uses: memory, professional needs, playing my musician needs, working like swimming, and on, BUT I a, alive & with a fantastic wife, Karen.

Thx,
Greg D. @greg1956

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formbone67 | @formbone67 | Jul 27, 2025
In reply to @maryjaneevelyn "Our 16 year old daughter ran headlong into a metal support beam in the dark, full..." + (show)
Profile picture for maryjaneevelyn @maryjaneevelyn

Our 16 year old daughter ran headlong into a metal support beam in the dark, full speed, three months ago. She hit it across the face , directly over her nose and mouth. She suffered a concussion, whiplash and passed out for a "moment", had severe tooth pain in many teeth for weeks ( thankfully tooth pain has totally subsided), had a lot of bruising inside the mouth and around her nose, thankfully no broken bones, experienced dizziness and nausea at first, and severe headaches. They did a CT scan at the ER. She came out clear with that, thank God. We took her also to the chiropractor, and many times since. Our chiropractor has now mentioned the term "Post Concussion Syndrome" to us, after 3 months post injury, referring her to a neurologist clinic, which we are waiting to hear from. Our daughter has slept a LOT over the past few months, especially the first many weeks. Her symptoms have subsided mostly, but she continues to have headaches, every day, since her injury. Not constant, but comes and goes. We don't even know what brings them on. She cannot run or jog or even go for a brisk walk without getting a headache from the jarring of her head. We've had a lot of prayer for her and we'll continue in that, praying she continues to heal. We never anticipated these headaches to continue this long. We hope our insurance will cover what she needs, although we have no idea what that means. This is totally new to us and unexpected with her recovery. Hoping for some answers, and soon. She remains tired as well. ❤️‍🩹

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Sorry to hear about the situation. My wreck, coma, tbi was in 1997. I slept a lot and needed to be reminded of a lot. The headaches eventually went away after many years but the short term memory never returned. The headaches got worse and then I developed epilepsy. Mild at first, more severe now but not completely severe. The best thing for me was full strength aspirin, I didn’t want to get addicted to pain pills. The headaches come and go now, not nearly as severe as before but still comes. My accident was in 1997.

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brainhiccups0122 | @brainhiccups0122 | Jul 27, 2025
In reply to @maryjaneevelyn "Our 16 year old daughter ran headlong into a metal support beam in the dark, full..." + (show)
Profile picture for maryjaneevelyn @maryjaneevelyn

Our 16 year old daughter ran headlong into a metal support beam in the dark, full speed, three months ago. She hit it across the face , directly over her nose and mouth. She suffered a concussion, whiplash and passed out for a "moment", had severe tooth pain in many teeth for weeks ( thankfully tooth pain has totally subsided), had a lot of bruising inside the mouth and around her nose, thankfully no broken bones, experienced dizziness and nausea at first, and severe headaches. They did a CT scan at the ER. She came out clear with that, thank God. We took her also to the chiropractor, and many times since. Our chiropractor has now mentioned the term "Post Concussion Syndrome" to us, after 3 months post injury, referring her to a neurologist clinic, which we are waiting to hear from. Our daughter has slept a LOT over the past few months, especially the first many weeks. Her symptoms have subsided mostly, but she continues to have headaches, every day, since her injury. Not constant, but comes and goes. We don't even know what brings them on. She cannot run or jog or even go for a brisk walk without getting a headache from the jarring of her head. We've had a lot of prayer for her and we'll continue in that, praying she continues to heal. We never anticipated these headaches to continue this long. We hope our insurance will cover what she needs, although we have no idea what that means. This is totally new to us and unexpected with her recovery. Hoping for some answers, and soon. She remains tired as well. ❤️‍🩹

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@maryjaneevelyn - I had a TBI 3 years ago. What I learned in therapy is that if I start to feel dizzy, anxious or feel the beginning of a headache, it is time to stop what I'm doing and take a rest. For me, those were symptoms of over stimulation because my brain couldn't keep up with my activity whether physical, mental, sound, movement or otherwise. Difficult to tell your 16-year-old to stop what she's doing and use calming techniques, but it helps me greatly. I noticed that after starting to take more breaks, my headaches have decreased significantly. May be worth looking for a neuro-opthomologist in your area. They often work with people on the autism spectrum, post-stroke and PCS patients. Good luck as you continue to seek care. Your daughter is fortunate to have an articulate advocate on her side!

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