Dealing with Post Concussion Symptoms One Year Later. Suggestions?

@juliannm79 - how are you doing? Were you able to get any answers about PCS?

I'm wondering about PCS myself. I had a retro sigmoid craniotomy 7 years ago- to remove an AN tumor. It left me with some balance issues, partial deafness, brain fog and fatigue. In April I fell and was diagnosed with a concussion. Now dealing with constant headaches- dull, usually top of head, intensified fatigue and very low moods etc... all, and more of which I understand is normal for brain concussion. I see an OT

As of late- I've notice an occasional stabbing pain in the left side of my head- which is the side of the brain surgery.
No one has suggested a neurologist. Am I over reacting to think seeing one would be a good idea? I'm not sure if I should go back to Mayo (where I had the surgery) or push for one in Mpls- where I live.
Feedback welcome and appreciated.

Hi @rachelmc7ey - welcome to Mayo Clinic Connect. Three concussions is a lot. I had one that took me a month to recover from, and that was a lot to deal with. I can't imagine.

When you say you are struggling quite a bit, can you share a bit more about what you are struggling with (e.g., screens, headache, bright lights)?

Hi, I’m new to this group! Been suffering with PCS since taking a bad fall in 2024. It’s my 3rd concussion, and I’m still struggling quite a bit. We are taking a family roadtrip next week, and I’m packing all the things to try to help make the car ride more manageable. Wondering if anyone has any advice or helpful tips? Thanks!

Welcome to Mayo Clinic Connect, @swimman1. I moved your post here so you could chat with others who've discussed post-concussion syndrome.

Will he get a chance to visit with the neurologist before starting school for the year? What are his feelings about the post-concussion syndrome and managing his symptoms at school?

Our 15-year-old son suffered multiple concussions last fall from high school football. It has now been nearly a year, and we believe he is suffering from post-concussion syndrome. His primary symptoms include headaches, social anxiety, occasional fogginess, discomfort around loud noises, and tired eyes. Our next step is to see a neurologist. We welcome any comments, feedback, or next steps on how our son can best cope with these symptoms as he begins the new school year.

Hey All:I have post concussive syndrome after an injury in November. Does this group have zoom mtgs?Thanks in advance!

Our 16 year old daughter ran headlong into a metal support beam in the dark, full speed, three months ago. She hit it across the face , directly over her nose and mouth. She suffered a concussion, whiplash and passed out for a "moment", had severe tooth pain in many teeth for weeks ( thankfully tooth pain has totally subsided), had a lot of bruising inside the mouth and around her nose, thankfully no broken bones, experienced dizziness and nausea at first, and severe headaches. They did a CT scan at the ER. She came out clear with that, thank God. We took her also to the chiropractor, and many times since. Our chiropractor has now mentioned the term "Post Concussion Syndrome" to us, after 3 months post injury, referring her to a neurologist clinic, which we are waiting to hear from. Our daughter has slept a LOT over the past few months, especially the first many weeks. Her symptoms have subsided mostly, but she continues to have headaches, every day, since her injury. Not constant, but comes and goes. We don't even know what brings them on. She cannot run or jog or even go for a brisk walk without getting a headache from the jarring of her head. We've had a lot of prayer for her and we'll continue in that, praying she continues to heal. We never anticipated these headaches to continue this long. We hope our insurance will cover what she needs, although we have no idea what that means. This is totally new to us and unexpected with her recovery. Hoping for some answers, and soon. She remains tired as well. ❤️‍🩹

I'm wondering if anyone has experience with, or has learned about, a recurrence of PCS symptoms well after the initial injury and concussion and after what felt like a "full recovery."