How long does post concussion head pain and cognitive fatigue last?

Hello and happy new year everyone,

I was rear ended twice in the last three years and I am really struggling the second time with the TBI, post concussion syndrome and the returning to gradual activity. First does anyone have any experience with how long the head pain lasts with activity or cognitive fatigue? I found taking breaks every time the head pain worsens helps but it’s so frustrating as it’s painful and takes forever to do anything. Thank God that all the MRI’s and CT scans were good but I am seven months post accident and just wondering if any has experienced anything similar and has some insights. Still struggling with the memory, brain fog, cognitive fatigue, confusion and multitasking is next to impossible which doesn’t help as my career requires all of those things. My speech pathologist is optimistic and just wanted to know what is everyone else’s experienced opinions.

Thank you so much everyone and I hope you are all doing well and are having a blessed new year so far.

Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.

Profile picture for cor17 @cor17

@kayabbott
Yes I see a neuropsychologist I am a month from two years yes the first year and a half was hell! But I'm still suffering. Especially with the fatigue. Yes it's up and down for sure and pacing is what I focus on. It's very hard. Unpredictable.
Did you find after 2 years you felt much better? I also had many other injuries.

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@cor17 As you have found, healing from TBI is hard and very slow. I didn't have physical injuries beyond my TBI and skull fracture. Physical injury adds to the fatigue. After 2 years I felt better, but still some physical and emotional fatigue. I exercised my brain and body when I wasn't fantasizing about naps. I still had to heal from the social isolation; every time a coworker joked about me being brain damaged I felt gut punched. Most people will have no idea of what you are going through physically and emotionally, and having at least one person for support is important. I was also working on integrating who I was with who I was now; even just having a TBI will change you for better and worse. I lost trust in my self and abilities until I had healed enough to recognize what a difficult journey I had been traveled.
Most of my recovery took about 2.5 years (as marked by smell and taste returning and word finding mostly returning). It actually took more than 8 years for my final-point recovery, when my left temporal EEG was normal and driving felt like cars were not aiming for me (processing incoming noise, motion, colors). It has been 33 years, and my word finding didn't recover completely, but it means I have a good excuse to cheat on crossword puzzles.

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Profile picture for Dolly Jane @dollyjaneprenzel

@markmac
I am the same. Jan 24 2024. I will never be the same. Tough to live with. Dolly

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@dollyjaneprenzel
Same April 25, 2024, never the same!

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Profile picture for valka @valka

I take breaks and drink lots of water when I begin to get that feeling in my head like it’s done. Before the pain starts. So yes that works for me too. I’m 18 months in.
As for the headaches. The whiplash has calmed a lot. The headache pain is less intense and doesn’t last as long. When the headache kicked in, it lasted a few days. Usually 4ish. and sometimes it was more intense. But yes, about 3 months ago it took a leap further away from the intensity.
I do light weights for mood stability. And sometimes I have to lessen the lbs because I feel that headache warning. I do lite arobices too help clear the debris from the electrical storm of the concussion. And I do yoga for peace. (I can’t recall what, but it means or leads to peace of mind).
I don’t sleep on my left side or on my back with my head looking anywhere near left. Or I wake with the concussion headache and the day or 2 is almost non functioning. With pain and fog and concussion.

There is hope! My heart goes out to you.

How’s your digestive system? Mine is wacky. Like right now it’s offline. Well glitching it is. It’s weird. But it’ll get back to work within an hour or two.

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@valka
My guy is off as well new allergies and I have to eat the same foods or I react. Second brain is the gut.

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Profile picture for kayabbott @kayabbott

My moderate TBI was 32 years ago. My headache only lasted a week so best to check with a neurologist on ways to manage that. I was working and writing my PhD dissertation at the time, so recovery was my year from hell (1.5 years to get to 90%). Pacing onself and napping so you don't hit the extreme fatigue is important. If you have an office, close the door and take a short nap. Good that you are in speech therapy. The brain does rewire, but it takes a long time and is a bit like a staircase with steps up, plateaus, and then down as the brain heals. Single focus is important while healing; break jobs into easier pieces rather than trying to multitask. I still do crosswords, suduko, and other games and I keep learning (my version of the brain as a muscle). Stress is very hard, and difficult to avoid, but find whatever escapes that you can. Let us know how you are doing and your healing progresses.

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@kayabbott
Yes I see a neuropsychologist I am a month from two years yes the first year and a half was hell! But I'm still suffering. Especially with the fatigue. Yes it's up and down for sure and pacing is what I focus on. It's very hard. Unpredictable.
Did you find after 2 years you felt much better? I also had many other injuries.

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Profile picture for markmac @markmac

@ccmedic5 I’m 2 months away from 2 years since my car accident. I’m constantly struggling with headaches, anxiety, depression, nausea etc. I lost 45 lbs after the accident and have only been able to put 10 back on.
I was at a perfect weight 210 lbs 6’3” tall. My wife says I’m too vain to do any harm to myself. I can honestly say that there are nights when I wonder why I’m still on earth. I can read for 30 minutes and then the headaches and nausea start. Just writing this is doing me in. I’m glad I found this group because it’s nice to get my feelings out.
Thanks Mark

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@markmac
I am a month from 2 years and still suffering as well. I was hit by a car as a pedestrian. I have a moderate brain injury. I have made improvements, currently doing vision therapy however the fatigue, attention and multitasking are poor. I often need a nap after cognitive tasks. I am less patient and have a shorter fuse. I have not returned to work and struggle with the idea I will ever be able to return ( elementary teacher). My whole life has changed. It's hard because many people I would say most don't understand truly. It's very misunderstood. Not visible and usually with other injuries I could soldier on, I have had a double mastectomy. This is different you just can't. It feels as though my brain shuts down my body.
I continue to work towards healing. Onward and upward. I hope you are as well.

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Hear dat!!! Long road to recovery if any. Sometimes it feels like I’m going backwards in health rather than getting better. Besides Functional Neurology professionals? Keep moving so you don’t rust and flexible so you don’t break. I found some help with the videos on http://www.nbia.ca

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Hello, please forgive me but first time on this site; i`m speaking from the UK. 2 months ago, out cycling i came of my bike, in the rain and smashed my forehead on a scaffold bar; black eyes followed, then fell backwards after becoming very dizzy and disoriented. Up to the local AE, CT scan, x-ray, and diagnosis was Post Concussion.
Never had this, and i am completely baffled as to when these symptoms of chronic fatigue, dizziness, headaches, dry mouth and loss of appetite will eventually disappear. I am 72 yrs young, and cycling means a lot to me, but at the moment i dare not risk going out. Is there anyone out there who is in exactly the same predicament ?, any thoughts and advise would be very welcome
Kind regards
David Lunt

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Profile picture for Lisa Lucier, Moderator @lisalucier

@mldcinci - how do your "TheraSpecs" help with your computer time?

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@lisalucier TheraSpecs offer several lenses which block certain types of light. I got their multi-light blocking lenses, which help me be able to work on my computer without getting migraines. I still need to take breaks and I keep my desktop computer brightness turned very low, but I can now tolerate desktop computer work, something I could not do at all until I got the TheraSpecs. Your optometrist can order the l lenses for prescription glasses, too.

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Profile picture for mldcinci @mldcinci

EVERYONE is different. My neurologist is certain to stress this. There's no way to predict how long any of this will last. I've worked hard to regain my ability to read and use my desktop computer, but I still need "TheraSpecs" to use my computer, even with the brightness set very low.

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@mldcinci - how do your "TheraSpecs" help with your computer time?

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Profile picture for markmac @markmac

@ccmedic5 I’m 2 months away from 2 years since my car accident. I’m constantly struggling with headaches, anxiety, depression, nausea etc. I lost 45 lbs after the accident and have only been able to put 10 back on.
I was at a perfect weight 210 lbs 6’3” tall. My wife says I’m too vain to do any harm to myself. I can honestly say that there are nights when I wonder why I’m still on earth. I can read for 30 minutes and then the headaches and nausea start. Just writing this is doing me in. I’m glad I found this group because it’s nice to get my feelings out.
Thanks Mark

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@markmac
I am the same. Jan 24 2024. I will never be the same. Tough to live with. Dolly

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