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Post CAR T cell -- rash

Posted by greta_k @greta_k, Feb 11, 2019

I was wondering if any patients have experienced a rash post CAR T cell? My husband is 4 post post treatment and has been starting to breakout in a red rash (itchy at time). It is not too severe and we have told our hematologist but we were just wondering if others are having any similar symptoms.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 21 9:19pm
In reply to @karenkkm "Hello, Karen here & I am 1 year out of carT treatment & am so very..." + (show)
@karenkkm

Hello, Karen here & I am 1 year out of carT treatment & am so very grateful for it! I have had periodic itching and found all your comments very helpful. I have started using CeraVe itch relief per my GPs suggestion and am happy with it. This morning I woke up with two dime size welts above my knee & the area was itching. They were noticeably raised. I put on the CeraVe and they appear to be better. Has anyone experienced welts (not blisters)
Thanks

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Hi @karenkkm, I'm certain @grandpabob will join me in welcoming you. Congrats on the successful CAR-T treatment. Are the itching and welts a new symptoms for you? How are the welts today?

REPLY
annberkowitz | @annberkowitz | Jan 22 8:37am
In reply to @karenkkm "Hello, Karen here & I am 1 year out of carT treatment & am so very..." + (show)
@karenkkm

Hello, Karen here & I am 1 year out of carT treatment & am so very grateful for it! I have had periodic itching and found all your comments very helpful. I have started using CeraVe itch relief per my GPs suggestion and am happy with it. This morning I woke up with two dime size welts above my knee & the area was itching. They were noticeably raised. I put on the CeraVe and they appear to be better. Has anyone experienced welts (not blisters)
Thanks

Jump to this post

Hi--
I'm one year out from a successful CAR-T. A few months ago I had a rash on the back of my neck. My dermatologist said it was shingles. Not sure it was, but could be. Below my scapular on right side and on head and it marched all along the back of my neck. Itched like crazy. What has helped me the most is good ole calamine lotion. I still apply it twice daily to my neck. My oncologist said i was too far out for skin issues., BUT if the dermatologist biopsied it to send some to them so they could look at it too. I'm not really sure they any of the know what it is. So many odd maladies but thankfully nothing serious.

REPLY
Bob, Alumni Mentor | @grandpabob | Jan 24 11:10am
In reply to @karenkkm "Hello, Karen here & I am 1 year out of carT treatment & am so very..." + (show)
@karenkkm

Hello, Karen here & I am 1 year out of carT treatment & am so very grateful for it! I have had periodic itching and found all your comments very helpful. I have started using CeraVe itch relief per my GPs suggestion and am happy with it. This morning I woke up with two dime size welts above my knee & the area was itching. They were noticeably raised. I put on the CeraVe and they appear to be better. Has anyone experienced welts (not blisters)
Thanks

Jump to this post

Hello @karenkkm, Welcome to Mayo Clinic Connect. I agree with you that CarT is something to be grateful for.

I would have to say that I have not had any welts however have had many different kinds of rashes. In all the rashes I had I treated them with standard over the counter lotions which did help a lot. I am now five years post treatment and can say that the rashes have dissipated to a great degree. At this point I am thinking they are simply a part of life.

Is the CeraVe continuing to give you relief?

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