Pituitary brain tumor removed, daughter has nerve pain 10 years later

Posted by Grama Teri @gramateri, Jan 9, 2012

My 44 year old daughter had a pituitary brain tumor removed 10 years ago in Milwaukee, WI, and has had horrible electric-shock-type pain in her head ever since. She has tried everything, and been to three pain clinics and/or programs. She is on morphine and percocet and has never been able to return to work. She has been on disability for the past 5 years. She is now going to have electro-neuro-stimulator surgery in Oshkosh, where she lives, and I 'd rather she saw someone at Mayo instead. Can anyone help us?

Interested in more discussions like this? Go to the Brain Tumor Support Group.

loretta61 | @loretta61 | Jul 12, 2016

My husband had a chiari malformation and had bad haedace all the time he under went surgery to allow more room for his brain. The doctor cut out part of the base of his skull. It only made his headace's worse but becides that he is a different person now! He acts different, doesn't remember stuff and his reaction to things so different than it would of been before! We were married 25 years before his surgery and now we have been married 35 years so i know the difference I wonder if there is anyone else this has happened to and if there is any way to change him back