Possible scam

Posted by mcd123 @mcd123, Oct 18, 2022

Anyone ever heard of nerve control 911? Looks like one of many scams to me.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Let me start by saying I truly like that idea of all natural ingredients. I ordered 1 bottle off Amazon. Phytage labs is the seller. On there suite the pictures of the bottle looked and read exactly the way it was supposed to. When I received my bottle on the fount is printed marshmallow root like its supposed to. Now on the back there was only 1 ingredient listed (beetroot) beetroot isn't even one of the ingredients. There is also a sticker on the side of the bottle that has Phytage lbs name on it. Now there suite says there are no returns. I never opened the bottle. I contacted Amazon and explained the situation. They where very accommodating and refunded the full amount. I will be calling Phytage labs to inquire about this. I'll keep you posted on what they have said. I find this to be very odd and a bit disturbing. Until then I will not be purchasing Never Control 911.

Sincerely
Will report back

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There are so many companies out there just waiting for desperate people like me and you, looking for anything that will provide some kind of relief and most of them don’t work at all. The doctor told me there is no cure for neuropathy, I have tried everything with some relief but not any miracle drug yet. The only time I get comfort is when I take a pain pill. I will continue to read these comments and try to find some help but I have stop spending my money on things online that don’t help. Quit being scammed by these jerks!

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I have tried all pills, Gabpentin, Lyrica, etc., etc. Even a treatment similar to Tens, named Sanexa that supposedly stimulates nerves on the feet and claim to regenerate the nerves. The last of this was a spine stimulation implant. The trial period did prove that I do not benefit from this electrical impulse treatments. In fact it seems to worsen my symptoms, that of numbness, burning-cold sensation on my feet, and slightly up the outside of my lower part of my legs. The pain on the back of my thighs are only controlled by steroid injections, but that is a short lived relief, about 3 months. What else is there to try outside of surgery for spinal stenosis that some medical professionals say that is the root of my problem. But there is no guarantee that will cure my suffering. Any one has done what I have and had good results? We all perceive pain different ways, but something one has tried may help me. Please comment.

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@antonintampfl2009

I have tried all pills, Gabpentin, Lyrica, etc., etc. Even a treatment similar to Tens, named Sanexa that supposedly stimulates nerves on the feet and claim to regenerate the nerves. The last of this was a spine stimulation implant. The trial period did prove that I do not benefit from this electrical impulse treatments. In fact it seems to worsen my symptoms, that of numbness, burning-cold sensation on my feet, and slightly up the outside of my lower part of my legs. The pain on the back of my thighs are only controlled by steroid injections, but that is a short lived relief, about 3 months. What else is there to try outside of surgery for spinal stenosis that some medical professionals say that is the root of my problem. But there is no guarantee that will cure my suffering. Any one has done what I have and had good results? We all perceive pain different ways, but something one has tried may help me. Please comment.

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Has any of your docs prescribed opoids. That is the only thing that has relieved my misery. I only take opoids when necessary but that is still usually four every day.
Good luck

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@2dogman

Has any of your docs prescribed opoids. That is the only thing that has relieved my misery. I only take opoids when necessary but that is still usually four every day.
Good luck

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I do take Tramadol; but, it usually just takes the edge off of the pain-do you take anything stronger?

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I was switched to oxycodone from Tramadul I didn’t want to switch because it’s a opioid after they explained how much better it was I switched ,let’s face facts I’m not going to get any better than I am I’m always going to be on a pain pill eventually even stronger so getting addicted doesn’t worry me try it if it doesn’t work at least you tried good luck

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@antonintampfl2009

I have tried all pills, Gabpentin, Lyrica, etc., etc. Even a treatment similar to Tens, named Sanexa that supposedly stimulates nerves on the feet and claim to regenerate the nerves. The last of this was a spine stimulation implant. The trial period did prove that I do not benefit from this electrical impulse treatments. In fact it seems to worsen my symptoms, that of numbness, burning-cold sensation on my feet, and slightly up the outside of my lower part of my legs. The pain on the back of my thighs are only controlled by steroid injections, but that is a short lived relief, about 3 months. What else is there to try outside of surgery for spinal stenosis that some medical professionals say that is the root of my problem. But there is no guarantee that will cure my suffering. Any one has done what I have and had good results? We all perceive pain different ways, but something one has tried may help me. Please comment.

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I had spinal surgery for stenosis. No help, don’t bother.

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I posted this under the Possible Scam discussions, I am glad some have read it and commented. Thanks. I am taking Tramadol, so far it seems it might be the reason for some improvement. I began taking vit B complex (supposedly max strength) and another supplement called NeuraZen that has Benfotiamine, Turmeric Root, Alpha Lipoic Acid, L'Arginine, amongst other ingredients that supposedly promote nerve health, supports nerve discomfort, and is a nutritional booster for Neuropathy (Amazon is a source if interested to try). I do not know if that together with Tramadol has help the night discomfort. I am going to reduce the dosage of Tramadol to see if the supplements alone help. Tramadol being a diuretic causes frequent urination in my case, so the night sleep gets interrupted, on the downside.

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@antonintampfl2009
I hope you talked to your doctor or pharmacist before begining this vitamin regiment.
Jake

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@antonintampfl2009

I posted this under the Possible Scam discussions, I am glad some have read it and commented. Thanks. I am taking Tramadol, so far it seems it might be the reason for some improvement. I began taking vit B complex (supposedly max strength) and another supplement called NeuraZen that has Benfotiamine, Turmeric Root, Alpha Lipoic Acid, L'Arginine, amongst other ingredients that supposedly promote nerve health, supports nerve discomfort, and is a nutritional booster for Neuropathy (Amazon is a source if interested to try). I do not know if that together with Tramadol has help the night discomfort. I am going to reduce the dosage of Tramadol to see if the supplements alone help. Tramadol being a diuretic causes frequent urination in my case, so the night sleep gets interrupted, on the downside.

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What @jakedduck1 says... Also remember, just because something is a "supplement" instead of a prescription drug does not make it safe - or effective. And not all supplement, which are not subject to FDA testing, contain what the label says. So if you plan to add something, consider a single ingredient that others here have found helpful over time (not just "I think I slept better" for a few days - that can be the placebo effect.)
First, if you have an adverse reaction, you know what is causing it.
Second, when supplement makers "dump" tons of ingredients into one pill, it is often a ploy - they know what the "in" things being marketed right now are, so put a little of each, plus a bunch of other good-sounding stuff in to entice you into thinking you can get it "all for one price" when what you are most likely getting is a lot of the cheap ingredients and just a pittance of the ones advertised.
Let's take NeuraZenx for example -
Each dose (2 tablets) includes WELL OVER the recommended daily allowances for Vitamin D, Vitamins B2, B6, B12 & Folate - which at BEST gives you expensive urine, and at WORST can cause an overdose of one or more - especially when added to your daily diet and any other supplements you take.
Now let's look at that long list of "other good stuff" and see what WebMD, Mayo and others say about possible effectiveness for neuropathy, and what is a therapeutic dose.

For a therapeutic dose of: 2 capsules have: Good for Neuropathy:
Turmeric root (curcumin) 600-900mg 100mg unknown
Alpha-lipoic acid 600-1800mg 600mg yes
Acetyl-l Carnitine 1500-3000mg 100mg yes
Benfotiamine 150-600mg 200mg yes
N Acetyl-cysteine 600-1200mg 10mg unknown
L Arginine 1500-2400mg 25mg unknown
All the rest are of unknown benefit to neuropathy, and extremely tiny amounts...
You get the idea.
I say talk to @johnbishop and others here about what they may have found before you spend money.
And that's my "Number crunching" for today
Sue

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