Possible Autoimmune…undiagnosed

Undiagnosed rheumatoid arthritis
I'm wondering if anyone has gone through anything like this. I was diagnosed with bilateral osteoarthritis in my hands in 2021. They prescribed me celebrex. I've just been taking it everyday for the last 3 years. 2023, I'm getting back injections for a old injury and nothing is working and the pain is more widespread. MRI shows arthritis in lumbar spine. Pain management doctor suggested a Ra test. It's negative. I know something is wrong. My grandmother and my aunt have Ra. I beg for a referral to a rheumatologist. 3 months away. I find a rheumatologist that will see me. He diagnosed me with bilateral bursitis and fibromyalgia but not Ra. Tests are negative. I'm in so much pain. He gives me hip injections. That helps! He tells me I have bilateral osteoarthritis all over my body at 40 years old. I've already had my records transferred. I know there's more. I stop the celebrex. I missed a dose for 7 hours and I blew up, turned red, hot and the pain. This i guess sent me into a bad flare. To the point I have loss of appetite and nausea so bad. I ended up going to the ER a couple of days ago I haven't eaten and have been nauseous for 2 weeks. I've lost 25lb in a month. They believe I have RA in my stomach and that the celebrex is suppressing my inflammation markers.I have it in my hands, feet, knees, elbows, lumbar spine, and cervical spine. I have gum disease, light sensitivity, vitamin d deficiency, finger and toe deformity, and a dry cough. I still have the appointment I made 3 months ago. I'm not going to take the celebrex before I see her. Someone has to see me! This is going to kill me if they don't help me! It's taken me 7 months of fighting with doctors to even get here.

Undiagnosed rheumatoid arthritis
I'm wondering if anyone has gone through anything like this. I was diagnosed with bilateral osteoarthritis in my hands in 2021. They prescribed me celebrex. I've just been taking it everyday for the last 3 years. 2023, I'm getting back injections for a old injury and nothing is working and the pain is more widespread. MRI shows arthritis in lumbar spine. Pain management doctor suggested a Ra test. It's negative. I know something is wrong. My grandmother and my aunt have Ra. I beg for a referral to a rheumatologist. 3 months away. I find a rheumatologist that will see me. He diagnosed me with bilateral bursitis and fibromyalgia but not Ra. Tests are negative. I'm in so much pain. He gives me hip injections. That helps! He tells me I have bilateral osteoarthritis all over my body at 40 years old. I've already had my records transferred. I know there's more. I stop the celebrex. I missed a dose for 7 hours and I blew up, turned red, hot and the pain. This i guess sent me into a bad flare. To the point I have loss of appetite and nausea so bad. I ended up going to the ER a couple of days ago I haven't eaten and have been nauseous for 2 weeks. I've lost 25lb in a month. They believe I have RA in my stomach and that the celebrex is suppressing my inflammation markers.I have it in my hands, feet, knees, elbows, lumbar spine, and cervical spine. I have gum disease, light sensitivity, vitamin d deficiency, finger and toe deformity, and a dry cough. I still have the appointment I made 3 months ago. I'm not going to take the celebrex before I see her. Someone has to see me! This is going to kill me if they don't help me! It's taken me 7 months of fighting with doctors to even get here.

Undiagnosed rheumatoid arthritis
I'm wondering if anyone has gone through anything like this. I was diagnosed with bilateral osteoarthritis in my hands in 2021. They prescribed me celebrex. I've just been taking it everyday for the last 3 years. 2023, I'm getting back injections for a old injury and nothing is working and the pain is more widespread. MRI shows arthritis in lumbar spine. Pain management doctor suggested a Ra test. It's negative. I know something is wrong. My grandmother and my aunt have Ra. I beg for a referral to a rheumatologist. 3 months away. I find a rheumatologist that will see me. He diagnosed me with bilateral bursitis and fibromyalgia but not Ra. Tests are negative. I'm in so much pain. He gives me hip injections. That helps! He tells me I have bilateral osteoarthritis all over my body at 40 years old. I've already had my records transferred. I know there's more. I stop the celebrex. I missed a dose for 7 hours and I blew up, turned red, hot and the pain. This i guess sent me into a bad flare. To the point I have loss of appetite and nausea so bad. I ended up going to the ER a couple of days ago I haven't eaten and have been nauseous for 2 weeks. I've lost 25lb in a month. They believe I have RA in my stomach and that the celebrex is suppressing my inflammation markers.I have it in my hands, feet, knees, elbows, lumbar spine, and cervical spine. I have gum disease, light sensitivity, vitamin d deficiency, finger and toe deformity, and a dry cough. I still have the appointment I made 3 months ago. I'm not going to take the celebrex before I see her. Someone has to see me! This is going to kill me if they don't help me! It's taken me 7 months of fighting with doctors to even get here.

Undiagnosed rheumatoid arthritis
I'm wondering if anyone has gone through anything like this. I was diagnosed with bilateral osteoarthritis in my hands in 2021. They prescribed me celebrex. I've just been taking it everyday for the last 3 years. 2023, I'm getting back injections for a old injury and nothing is working and the pain is more widespread. MRI shows arthritis in lumbar spine. Pain management doctor suggested a Ra test. It's negative. I know something is wrong. My grandmother and my aunt have Ra. I beg for a referral to a rheumatologist. 3 months away. I find a rheumatologist that will see me. He diagnosed me with bilateral bursitis and fibromyalgia but not Ra. Tests are negative. I'm in so much pain. He gives me hip injections. That helps! He tells me I have bilateral osteoarthritis all over my body at 40 years old. I've already had my records transferred. I know there's more. I stop the celebrex. I missed a dose for 7 hours and I blew up, turned red, hot and the pain. This i guess sent me into a bad flare. To the point I have loss of appetite and nausea so bad. I ended up going to the ER a couple of days ago I haven't eaten and have been nauseous for 2 weeks. I've lost 25lb in a month. They believe I have RA in my stomach and that the celebrex is suppressing my inflammation markers.I have it in my hands, feet, knees, elbows, lumbar spine, and cervical spine. I have gum disease, light sensitivity, vitamin d deficiency, finger and toe deformity, and a dry cough. I still have the appointment I made 3 months ago. I'm not going to take the celebrex before I see her. Someone has to see me! This is going to kill me if they don't help me! It's taken me 7 months of fighting with doctors to even get here.

Undiagnosed rheumatoid arthritis
I'm wondering if anyone has gone through anything like this. I was diagnosed with bilateral osteoarthritis in my hands in 2021. They prescribed me celebrex. I've just been taking it everyday for the last 3 years. 2023, I'm getting back injections for a old injury and nothing is working and the pain is more widespread. MRI shows arthritis in lumbar spine. Pain management doctor suggested a Ra test. It's negative. I know something is wrong. My grandmother and my aunt have Ra. I beg for a referral to a rheumatologist. 3 months away. I find a rheumatologist that will see me. He diagnosed me with bilateral bursitis and fibromyalgia but not Ra. Tests are negative. I'm in so much pain. He gives me hip injections. That helps! He tells me I have bilateral osteoarthritis all over my body at 40 years old. I've already had my records transferred. I know there's more. I stop the celebrex. I missed a dose for 7 hours and I blew up, turned red, hot and the pain. This i guess sent me into a bad flare. To the point I have loss of appetite and nausea so bad. I ended up going to the ER a couple of days ago I haven't eaten and have been nauseous for 2 weeks. I've lost 25lb in a month. They believe I have RA in my stomach and that the celebrex is suppressing my inflammation markers.I have it in my hands, feet, knees, elbows, lumbar spine, and cervical spine. I have gum disease, light sensitivity, vitamin d deficiency, finger and toe deformity, and a dry cough. I still have the appointment I made 3 months ago. I'm not going to take the celebrex before I see her. Someone has to see me! This is going to kill me if they don't help me! It's taken me 7 months of fighting with doctors to even get here.

I'm going through the a similar situation. I literally have every single symptom of Ra and family history of Ra but my blood test are normal. In the past 3 months I've really declined. I finally got a appointment with a rheumatologist next week.

I’m sorry that you are having to go through all this. I too have been battling these symptoms. For years I’ve been going from one specialist to another. I’ve had numerous labs drawn and they keep saying they’re normal. I have random flare ups where my feet are burning or tingling. Throbbing in my legs, pain in my neck and down my arms, into my hands…sometimes my arms and hands go numb. I get headaches mostly on the left sometimes in right side and my vision has gotten worse. The only reason my rheumatologist is still testing me is because I mentioned that when taking oral steroids I don’t get pain. I’ve had the steroid shots in my neck and lower back which did not help just caused more flare ups. I recently had a follow up with pain management and they are referring me to UNC Chappel Hill for a second opinion because they’re at a loss. I’ve tried meds like Lyrica and others and nothing helps. It’s very upsetting but don’t give up. I’ve had normal labs and yet I’m still getting sent to specialists, I’d check with your insurance company and see if you have to have a referral to see a specialist. If you don’t then I’d schedule my own appointment with one. You don’t always need a physician to see a specialist.
My daughter has a friend that has Lupus and she went through the same stuff we’re dealing with. After years and a good Dr she was finally properly diagnosed. (She never had the rash)