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Poor Qusality Sleep on ASV Machine Question

Posted by inquirer2 @inquirer2, 3 days ago

After using my CPAP machine for about a year, I started to get a big increase of central apneas. I read that a rise in central apneas is usually due to a heart or Kidney problem. Well, I recently had an echocardiogram & the results came back as normal & my blood pressure is also normal.

To correct the central apnea problem, my doctor switched me to an ASV machine. Result - All apneas, plus my central apneas, went way down to a very acceptable level. However, the quality of my sleep was still lousy. The doctor didn’t try to find out why I am still not sleeping properly on the ASV machine; he just told me to go back to using my CPAP machine & he will talk to me a year from now. After all this time and money, and I am still not sleeping properly, he tells me this. I am quite annoyed and disappointed. Not sure what to do. Does anyone have any suggestions?

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gloaming | @gloaming | 2 days ago

The ASV's morning report should be all you need to convince you to stay on it. Your sleep problems are another matter, and you need either coaching or referral to a sleep lab to see if you have developed other defects or another disorder quite unrelated to your apnea. Or, maybe your current ASV's therapy needs some tweaking. If you haven't done so already, would you consider going over to apneaboard.com and registering? Then, present a brief synopsis of your recent history, what diagnosis you have, how it is currently being treated, and what other improvements the gang there might offer. It may be all you need to get ahead and to dial in some great sleep. Note that the gurus there will want to see a redacted somnography report, if one was done, or a formal diagnosis, but at the least they'll want to see some recent hard data. There is a freeware on that site that is excellent at interpreting your machine's data. If you go to the top masthead, you'll see, mostly toward the right, 'OSCAR'. Click on that and you'll find the information and download. Note also that you would need to remove the SIM card from your machine, if it has one. You'll need a card reader or to use the appropriate slot in an older PC/laptop's panels.
But, if we can assume your sleep is therapeutically controlled now, and that you are much better off, it is most likely that you have something else going on. It might not be apnea, but arousals, hypopneas, flow limitations of some kind that prevent you from moving through the various stages of sleep. In time, this condition can be debilitating. So, someone, some bright bulb, will need to see some hard data in order to figure out what is defective or inadequate. Apneaboard might help, or another sleep lab if you need it/haven't done one yet. Maybe all that is at play is generalized anxiety over the changes you've had to adapt to. They must not have been spectacularly fun.

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debbiejody | @debbiejody | 1 day ago
In reply to @gloaming "The ASV's morning report should be all you need to convince you to stay on it...." + (show)
Profile picture for gloaming @gloaming

The ASV's morning report should be all you need to convince you to stay on it. Your sleep problems are another matter, and you need either coaching or referral to a sleep lab to see if you have developed other defects or another disorder quite unrelated to your apnea. Or, maybe your current ASV's therapy needs some tweaking. If you haven't done so already, would you consider going over to apneaboard.com and registering? Then, present a brief synopsis of your recent history, what diagnosis you have, how it is currently being treated, and what other improvements the gang there might offer. It may be all you need to get ahead and to dial in some great sleep. Note that the gurus there will want to see a redacted somnography report, if one was done, or a formal diagnosis, but at the least they'll want to see some recent hard data. There is a freeware on that site that is excellent at interpreting your machine's data. If you go to the top masthead, you'll see, mostly toward the right, 'OSCAR'. Click on that and you'll find the information and download. Note also that you would need to remove the SIM card from your machine, if it has one. You'll need a card reader or to use the appropriate slot in an older PC/laptop's panels.
But, if we can assume your sleep is therapeutically controlled now, and that you are much better off, it is most likely that you have something else going on. It might not be apnea, but arousals, hypopneas, flow limitations of some kind that prevent you from moving through the various stages of sleep. In time, this condition can be debilitating. So, someone, some bright bulb, will need to see some hard data in order to figure out what is defective or inadequate. Apneaboard might help, or another sleep lab if you need it/haven't done one yet. Maybe all that is at play is generalized anxiety over the changes you've had to adapt to. They must not have been spectacularly fun.

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I have sleep insomnia and have for years I still have trouble sleeping and have not found anything that helps I have been to a sleep lab but all they want to do is antidepressants I am not able to take makes it worse my mind never stops working anymore have some good advice

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