To the person who asked about AI. there are several out there. ive tried several and I settled on Grok and then moved to Super Grok..I use apple products...Go to your App Store and download ( don't let the word download scare you ) it actually says "get"Grok and start using by asking questions. I progressed to super Grok as time went on Grok is free, Super Grok is I think 20 dollars a month. One caveat I would check with your hematologist before any major changes. BTW I now use Grok for everything..understanding lab work, ...fixing things around the house really just about everything..it will write emails for you, offer suggestions to ask your hematologist at your next appointment.... I promise you, you won't be disappointed, I love it. BTW I asked Grog about vitamin C supplements and it was a big no, please check with your hematologist ....
@beebo
Thanks for your input.
Had my first ultrasound in March. Spleen looks fine but liver slightly enlarged and gallbladder full of stones - no symptoms from that.
Sometimes I think the more they test the more they find - whether related to PV or not 😆
@petoskeyb
Hello friend! Just a brief comment from someone cares about BLOOD ILLNESS PALS !
I would not just dismiss the GALBLADDER filled with stones ! See a GI SPECIALIST! Or even a stomach surgeon! Those stones can get infected and make very sick !
I had my gallbladder removed many years ago before they did the short surgery , forgot the name
We all have enough serious issues without additional ones popping up!
Thank about it ! Research
Go see a doctor who treats this ! It will not be your oncologist! Hanya
@petoskeyb
Hello friend! Just a brief comment from someone cares about BLOOD ILLNESS PALS !
I would not just dismiss the GALBLADDER filled with stones ! See a GI SPECIALIST! Or even a stomach surgeon! Those stones can get infected and make very sick !
I had my gallbladder removed many years ago before they did the short surgery , forgot the name
We all have enough serious issues without additional ones popping up!
Thank about it ! Research
Go see a doctor who treats this ! It will not be your oncologist! Hanya
@hanya Thanks for your insight.
Yes the oncologist NP just said if they don’t bother you we don’t like to touch it.
Seeing my primary this week for my annual exam and will question her about this.
I have noticed that if a symptom is not in their wheelhouse, specialists either dismiss it or try to make it fit in their specialty.
Barb
@petoskeyb
Same situation as you. Taking 100 synthroid for hypothyroidism for years and normal TSH results. Started HU 500 daily last June for PV. Just had thyroid tests and TSH has doubled to 7.6 since last year's thyroid test but T3 and T4 results remain the same.
Oncologist doesn't want to address this since HU working well on blood counts. So my PCP has increased synthroid to add 1/2 pill on Sat and Sun. I don't want to keep increasing synthroid because I also have osteopenia. HU has had many more unwanted side effects so I'm adding another to my list. I might decide to see an endocrinologist.
@mw2023 Nice to know I’m not alone!
Just got a message from my primary this week when she saw my elevated TSH asking if I’m still taking my same dosage - sigh - after all these years !
So I go in to see her for my annual exam soon and will ask her if I need to be referred to an endocrinologist. Don’t go back to the endocrinologist until next month to hear their opinion on it.
Barb
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@jackiecarey
Hey Jackie! I am the one who asked about AI and how to research ! Thank you for great explanation! I will download the free Grock
@petoskeyb
Hello friend! Just a brief comment from someone cares about BLOOD ILLNESS PALS !
I would not just dismiss the GALBLADDER filled with stones ! See a GI SPECIALIST! Or even a stomach surgeon! Those stones can get infected and make very sick !
I had my gallbladder removed many years ago before they did the short surgery , forgot the name
We all have enough serious issues without additional ones popping up!
Thank about it ! Research
Go see a doctor who treats this ! It will not be your oncologist! Hanya
@hanya Thanks for your insight.
Yes the oncologist NP just said if they don’t bother you we don’t like to touch it.
Seeing my primary this week for my annual exam and will question her about this.
I have noticed that if a symptom is not in their wheelhouse, specialists either dismiss it or try to make it fit in their specialty.
Barb
@mw2023 Nice to know I’m not alone!
Just got a message from my primary this week when she saw my elevated TSH asking if I’m still taking my same dosage - sigh - after all these years !
So I go in to see her for my annual exam soon and will ask her if I need to be referred to an endocrinologist. Don’t go back to the endocrinologist until next month to hear their opinion on it.
Barb