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PNET removed 2 years ago: Can it come back at another site?

Posted by snd @snd, Jan 14, 2025

Hi ..i did distal pancréatectomy with splectomy since 2 years..it was Pnet grade 2 ..last year my MRI was clean..now since 2 week minimum i feel dizzi stomach pain and tachycardia with too much bowel mouvement..has anyone experienced same symptoms..my Mri is next month..i did chromogranin and im waiting for the results

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midford | @midford | Aug 5, 2025
In reply to @lindabees "Wow!!! That is so wonderful to hear! That is the longest I have heard of. It's..." + (show)
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Wow!!! That is so wonderful to hear! That is the longest I have heard of. It's so nich for long term survivors to post on these boards to give others hope. It took me a long time to realize that long term patients and survivors aren't as active on these boards because they've done so well and have moved on. As a result, we tend to hear more of the short term stories.
Thank you amd co grats to your pioneering Mom!

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I had my 1.2 cm removed. It spread which was not expected. It had spread to one lymph node. 9 were removed. No treatment at this point. Scans every 6 months for 5 years. And yes I tend to not comment as I think I’m doing very well compared to others. All the very best to everyone!!

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