PMR Induced by Merck Zostavax LIVE Shingles Vaccine

Posted by pmr2016 @pmr2016, Jan 13 2:45pm

Received vaccine on November 26 2016. The following morning, the symptoms were as if I had a stroke. Could not get out of bed. My world has been turned completely upside down, with PMR Diagnosis, six weeks later, by several Doctors. Going into my sixth year with this debilitating autoimmune disease. Very poor mobility (walker & cane), twenty four/seven brain fog and extreme fatigue. Have started with 20mg Prednisone, and tapered down to 5mg several times, but with no success. Am now taking 7 mg daily for past two years. which barely takes the edge off my pain ! (Prednisone is not without side effects on it's own) !!! Every two years, here in the Yukon Territory, we may have a visiting Rheumatologist or Neurologist, so good luck with that !! Cary Bailie

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) group.

Hello Carrie @pmr2016, Welcome to Connect. I can't imagine how difficult it is to live in a remote area and have to deal with such terrible symptoms as those with PMR. You will notice that we removed your email address and personal information to protect your privacy. Members can share contact information securely using the private message function. Having spent a few weeks in Nome on a volunteer work assignment, I can relate to how difficult it is to get good health care and specifically see a specialist for treatments. Some of the folks I talked with mentioned having to fly to Anchorage for serious health problems.

My second round with PMR was in 2016 and fortunately I was able to taper off of prednisone after a year and half. You may also be interested in the tips shared in this similar discussion:
– Tapering off of Prednisone https://connect.mayoclinic.org/discussion/prednisone/

I'm guessing because you live in a remote area you already lead a fairly healthy lifestyle. The following article has some foods to avoid and other tips you might find helpful – What to eat if you have polymyalgia rheumatica: https://www.medicalnewstoday.com/articles/321683

Have you tried making any changes to the different foods you eat to see if it might help reduce inflammation which may be one of the biggest factors in what's causing the pain?

REPLY
@johnbishop

Hello Carrie @pmr2016, Welcome to Connect. I can't imagine how difficult it is to live in a remote area and have to deal with such terrible symptoms as those with PMR. You will notice that we removed your email address and personal information to protect your privacy. Members can share contact information securely using the private message function. Having spent a few weeks in Nome on a volunteer work assignment, I can relate to how difficult it is to get good health care and specifically see a specialist for treatments. Some of the folks I talked with mentioned having to fly to Anchorage for serious health problems.

My second round with PMR was in 2016 and fortunately I was able to taper off of prednisone after a year and half. You may also be interested in the tips shared in this similar discussion:
– Tapering off of Prednisone https://connect.mayoclinic.org/discussion/prednisone/

I'm guessing because you live in a remote area you already lead a fairly healthy lifestyle. The following article has some foods to avoid and other tips you might find helpful – What to eat if you have polymyalgia rheumatica: https://www.medicalnewstoday.com/articles/321683

Have you tried making any changes to the different foods you eat to see if it might help reduce inflammation which may be one of the biggest factors in what's causing the pain?

Jump to this post

Thank You for responding ! I cannot survive without Prednisone ( The Devil's Tic Tacs ). I try to keep a well balanced diet, and am mindful of foods that can cause inflammation ! Have also had (and survived) Left Carotid Endarterectomy, Triple Bypass Open Heart Surgery, Open AAA Surgery(replacement abdominal aortic artery), Pacemaker … The daily pain is typical PMR, Shoulders, collarbones, shoulder blades, left and right biceps, chronic fatigue and brain fog. difficulty rising to a standing position, difficulty getting out of bed EVERY morning, the list goes on and on and on !! .. ( While I Breathe, I Hope )

REPLY
Please sign in or register to post a reply.
  Request Appointment