PMR Flare

Posted by pjnewm @pjnewm, Oct 25, 2023

Has anyone had to increase their prednisone dose to 50 mg per day for a flare?

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@trimomlewis

What is an "autoimmune protocol diet"?

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The following link explains the autoimmune protocol diet.
https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet
I do think diet is important but it adds another element to an already complicated situation. Most of my pain happened for no reason at all. My pain was more like voodoo and dark magic if you ask me.

My immune system is just deranged. Fortunately, my doctors believe me and help me as much as they can. I don't completely understand the various inflammation pathways. The medication I currently take seems to stop my inflammation.

I had a recent rheumatology visit that became a "teaching session" for a medical student, resident doctor and a fellow. I asked the staff rheumatologist how he knew so much about me. To my surprise, he informed me that he had the same autoimmune condition that I have ---reactive arthritis and uveitis. The staff doctor wasn't old enough yet to have PMR.

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@cpd54

My pain is almost non existent when I follow an autoimmune protocol diet. It’s very restrictive and hard to comply with for long periods but when I “fall off the wagon” I can tell !!!

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Where did you get the autoimmune diet? I’m willing to try it!!

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@josie20019

Where did you get the autoimmune diet? I’m willing to try it!!

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Lots of websites to choose from. Just Google and choose the one that works for you. I also had a food sensitivity test done and some foods that are allowed on a AIP diet didn’t agree with me so I don’t eat those either. I basically eat meat, vegetables (no nightshades or high oxalate greens) and limited fruits.

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@pjnewm

30 to 40 but not enough and thus 50. I’m an orthopedic surgeon

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For what length of time would you be on the 50 mg
Lynda L

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