PMR and prednisone

Forgot to mention blue agave. It has 16gm of carbs plus 16gm of sugar per serving. Not a good choice. The tequila due to distillation has zero carbs or sugar. Drink away.

Thanks, this is going to be challenging for me!

"The tequila due to distillation has zero carbs or sugar. Drink away."

Alcohol in moderation maybe but too much isn't so good.
https://pmc.ncbi.nlm.nih.gov/articles/PMC11043057/
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I chuckle at the ultra low carb solution to prednisone side effects and inflammation. I couldn't find anything that was good to eat. Then I read an article that said eating causes inflammation.

"Experiencing inflammation after eating is a normal biological response."
https://www.kcl.ac.uk/news/new-study-significant-inflammatory-responses-meals.
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I do the best I can. I had a built in deterrent to eating with trigeminal neuralgia.

I'm laughing as I write the following recommendation for trigeminal neuralgia.

"Your mouth can also be a source of triggers. Brushing your teeth, eating, drinking, smiling, talking and kissing can trigger attacks. So consider eating softer foods so you don't have to chew as much."

I am happy I can laugh about it now. Sometimes being able to eat anything at all without getting a facial electric shock was challenging. "No chew foods" were loaded with carbs.

It is funny I guess is the word. I was on keto diet for the 2+ years and it took every bit of satisfaction from eating. I mentioned on another thread that the Mayo Dr. said to me my genetic cholesterol could not be fixed by diet. I am pretty sure thats American diet. Going out to eat with my wife became anything but romantic. By time I substituted for just about everything not much fun left. The good thing was she was more strict than I was.

You have to keep a sense of humor in spite of it all.

My daughter has familial hypercholesterolemia. We adopted her so she didn't get my genes. She is a hypochondriac but she never worries too much about her cholesterol levels. She has been on rosuvastatin for 20 years since she was diagnosed at age 15. She is the last person that you would suspect would have a high cholesterol level.

My daughter knows that some of my problems are hereditary. She is glad that she doesn't have my genes.

I never had high cholesterol until I was taking prednisone daily for PMR. I took atorvastatin for at least 10 years. My PCP started atorvastatin but it came as a recommendation from a cardiologist who started three blood pressure medications.

When I got off prednisone my cholesterol level was below normal so my rheumatologist stopped atorvastatin because "the statin might have been contributing to my symptoms." My endocrinologist didn't think my cholesterol level could be "too low" so he started Zetia. My PCP withheld her opinion about my cholesterol level. However, she was agreeable to stopping all my blood pressure medications because my blood pressure was too low.

My daughter was intrigued with my medication fiasco so she stopped her statin too. Her cardiologist wasn't too happy when her cholesterol level went up to 350.

Thank you so much for your reply. I started taping last week very slowly. I went from 4 to 3 and I have no pain so far. I will go a week on 3 and then try to go down to 2. I’ll continue the slow taper. I go back to the rheumatologist next month. Looking forward to being off of prednisone and praying that my PMR is going into remission.

They put me on Lipitor back in 2000 and four years later i had a lesion rupture through my colon. It all cleared up when I stopped the Lipitor. I have not taken any medication since 2004. It wasn't until my PMR started that Mayo clinic sent me for an ultrasound of the carotid. I have the right side 100% blocked. The left side was 70%. They also did the testing for FH. I had the left carotid cleaned. I decided that ignoring my cholesterol was not working to well. That would be my only advice to your daughter.

A little history. I had breast cancer 25 years ago. It is then that I realized we are what we eat. I went organic at home, not when eating out. Organic is now much easier than it was then. When you go organic you give up processed foods at the same time. Foods cost a little more, however their shelf life is longer, so not sure I spend more over time. You also learn you eat less because food taste better so you are sated sooner. I never used any sugar alternative, but I would listen to tuckerp about their knowledge based on keto experience.
I don't drink carbonated beverages. I drink my coffee black, no tea. Mainly water. I do drink 2-4 glasses wine per week. No desserts. Very low carbs. More colorful veggies. etc. Veggies like sweet potatoes and marshmallows don't even appeal to me any longer. Sweet potatoes, yes, sugar,no. Some veggies are very high in carbs.

Within 6 months my lipid panel looked better than it has in 20 years. Worth the journey. Not an easy journey but well worth the rewards. I did not lose any significant weight. I have a cousin who followed me and she has loss 20 pounds in addition to other rewards.

Hope this helps.

I know we have probably high-jacked the original comment. I have mentioned I have genetic cholesterol issues that Dr's say cant be solved by what I eat. I am a firm believer in you are what you eat. However, each of us seem to have come off the assembly line with one or more small changes to the original blueprint. No matter how slight it shows up somewhere. I also was lucky enough to inherit prostate cancer. I am on the Mayo forum. Its rather lengthy but here was a fellow forum member talking of diet in rather informational/humorous way.
https://connect.mayoclinic.org/discussion/fork-prostate-cancer/