PMR and different medication options

Posted by inga71 @inga71, 1 day ago

I had an appointment with a rheumatologist yesterday.
6 years ago I started using Prednisone for very bad joint pain and morning stiffness.
This rheumatologist prescribed methotrexate 15 mg, last September and I told her that it had some effect on my small joints like fingers and toes and I had managed to reduce the prednisone to 10 mg. I questioned if I could have rheumatic arthritis, since my small joints also are affected.

She didn’t care about any of my symptoms, the effect or my flair ups -the only focus is quit use steroids..

I tried to explain that I started use Prednisone because of bad inflammation in my bursae’s-in my joints, not general pain.
She told me that I probably have fibromyalgia, even if I’m tested for that and don’t have the sensitivity or the muscle pain, related to that.

Because of a childhood accident I am diagnosed with Complex regional pain syndrome type 2, not fibromyalgia. I also have classic Ehler Danlos.

I do understand the side effects of using prednisone. It’s sad that the morning stiffness and the horrible pain in the joints force you to use steroids, but so far there are no other treatments for PMR, since the only medication that are approved and have effect are corticosteroids, Methotrexate and Kevzara.

Since she has ordered blood tests for Lupus and Lyme disease I will have one more appointment, but after that I probably will not return to her. I just don’t see the point in having appointments with doctors that don’t listen to the patient.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@inga71, It definitely is not helpful to have a rheumatologist that doesn't work with you on treatments or listen to you when you are discussing your symptoms. I think I would also seek a second opinion with a different rheumatologist. 6 years is a long time to be dealing with the symptoms but I don't think you are alone. You might find it helpful to scan through a related discussion while you wait for members to respond.
-- PMR: Are there treatment alternatives to Prednisone?:
https://connect.mayoclinic.org/discussion/alternatives-to-prednisone/
You mentioned you had new symptoms in your small joints in your fingers and toes and were wondering if it might be related to rheumatoid arthritis (RA). A search of Connect for "PMR and RA" shows a lot of members have posted on the topic if you want to scan through them - https://connect.mayoclinic.org/search/.

Mike @dadcue has discussed many of the alternative treatments and may have some thoughts or experience to share with you. How soon is your appointment with the rheumatologist to go over you latest test results?

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