Please help ! Numbness hands, feet!

Posted by mellie88 @mellie88, Aug 17, 2023

Hello. I am having a time getting answers. First off, I have fibromyalgia and I’m being told that my symptoms are indeed fibromyalgia but I don’t believe it. My hands and feet feel tingly and numb almost all of the time with them falling asleep many times per week. When I touch metal or dishes they feel colder than they should. I am also coughing like I’m allergic to something (?) Doc says lungs are clear. I break out in a rash on my face and chest sometimes as well. Along with all of this I feel weak and my muscles feel strained. I can barely work out like I normally do. Doc says I’m as strong as ever. I have aches and pains but the pain doesn’t feel like fibromyalgia. I’ll get up and it feels like my blood is rushing to my legs. Doc says pulse in legs are fine. She said the last couple of times I had Reynauds but she hasn’t brought it up again. My hands don’t seem white or purple but red mottled? I’ve had a bunch of bloodwork done many times the last couple of months and all seems normal except a couple of days ago , one MCHC (platelets?). It was borderline low 31.4 and was 33 in June. Also my glucose was 66 a couple of days ago and 99 in June. ANA normal. Liver enzymes normal. Everything normal except the two mentioned above. I was put on prednisone but it didn’t do anything. I don’t have a nerve conduction test until 10/31. Docs (rheumatologist) and primary care don’t seem particularly concerned but I’m so stressed out and scared by this. I can’t go to the hospital again because we’re still paying off a visit from June (other issue) . I’m a 55 year old female by the way and in shape. Or was in shape. Please help.

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Ty! I take a bunch of supplements including magnesium, c and b. I’ll look into the other ones. I do appreciate this.

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Try doing aerobic exercise 30 minutes 3x a week to increase circulation. And try to not worry so much about this.

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Have you had your B12 levels tested. Read attached article for a possible cause.
I thought of you when i read the article. Don’t give up. You have to keep digging for a diagnosis to your symptoms.
From article:
Sensory and balance disturbances: can also be a warning sign of a B12 deficiency. These both have to do with B12’s effect on the nervous system. The most common manifestations include feelings of pins and needles in the fingers and feet, not being able to feel vibrations when they are happening close to you, and a lack of balance (especially with your eyes closed).
https://www.yahoo.com/lifestyle/those-white-spots-arm-could-145037519.html

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Thank you so much. They checked my B12 and I’m fine. 🙁

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My rheum just put me on a Medrol pack and it helped significantly. Not sure what to do now.

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