Pituitary tumor symptoms: joint, muscle and body aches

I truly emphasize with your condition. My only suggestion is: you are your best advocate. Be the squeaky wheel for yourself. Please check in from time to time.

Hi, I was diagnosed with a non functioning pituitary adenoma just over a year ago however there were very few symptoms until recently. I had an MRI in May 2025 that showed the adenoma had grown to 2 cm within the year & now I'm experiencing facial pain, headaches, muscle pain & weakness, fatigue, tremors, joint pain & I pass out all the time! I get very tired and shortly after, I pass out, mostly in my chair but I've passed out a couple of times on the kitchen counter & of course, the toilet. I'm waiting for approval to see a neurologist outside of my health network but I'm going to try to move it along a bit faster - if I can stay awake long enough to do it! I hope you can get some answers to your issues as they are allot like mine. If I get news about it I'll keep you apprised & would appreciate you to do so also. I look forward to some good news soon!

I am fortunate. My walnut size tumor is being treated with cabogoline. Most days ok, yet somedays—like today, June 28– very tired. At 67 and retired, napping is good. thomas Fox, i understand your frustration. My wife has really supported me. Being treated at Mayo Jacksonville.

Hi. I'm new to this. And I just don't know what to do. My wife is so patient,and considerate. Anyways I am having really bad vertigo and bad nausea with really bad headaches with neck pain, so in May they did an MRI and found a large pituitary mass and it's pressing on my brain stem. There goes the really bad head and neck pain. So far I'm on my 3rd neurosurgeon. From Hartford healthcare. All my dr's I have seen make me feel like there isn't anything wrong. I don't know I guess I am just venting. My wife already has a lot on her plate. Since I can't work anymore due to my vertigo and nausea. I guess I am wondering what to be expecting? Thank you

@adamdude, how did your appointments go? What are the next steps for you? How are you doing?

All your conditions are very similar to what I have. I was recently diagnosed with a pituitary tumor due to peripheral vision issues. I also have the body aches and muscle aches and joint pain every day. I currently have an appointment with an endocrinologist and a neurosurgeon to evaluate the tumor and discuss management. Your input in snd stores are very helpful to me understanding my condition and will update once I get some answers on what the next steps are.

Hello @rdele1567

I see that this was your post on Mayo Connect. I want to welcome you. Mayo Connect is a forum where I and many other members, have come feeling confused and not well. I see that these symptoms began in November. What type of specialists have you seen? Has there been any surgery or other follow-up regarding the colon cancer?

I look forward to hearing from you again. Will you post as it is convenient?

@rdele1567, that's a double whammy - pituitary tumor and colon cancer at the same time.

Have you had treatments for either? Both? How are you doing?

In November 27 2004 I woke up after midnight with a severe headache
I knew after about an hour that it was not your normal severe headache it hurt so bad I had to go to The E R
Within a couple hours of being in E R I started seeing double vision instead of 1 TV I saw 2 then my eye lid completely shut n I lost control of it
They ran several tests n found the Pituitary tumor in my forehead that put pressure on my eye and the found Cancer in my Colon luckily my tumor in my head had nothing to do do wit Pituitary Tumor doctors monitored it for a year and wasn't groing anymore so they left it alone 20 yrs later I'm starting to have that same headache everyday bones are hurting developed Heart Problems just all sorts of problems an I in danger of something possibly developing n going wrong with me body aches n all the symptoms developing
I'm getting worried because I didn't know bones and joints would ache from it and heart problems signed rdele1567 I'm concerned what can I do

Hola Teresa . El TNE lo tuvo mi esposa. Se lo diagnosticaron en. Septiembre del 2023. En Marzo del 2024 fue intervenida quirúrgicamente, enucleacion tumoral. Por ahora todos los controles salieron bien. No recibió tratamiento de nada, ni quimio ni radiación . T1 N0 M0. ahora en marzo tiene un nuevo control con el oncólogo y con la endocrinóloga. Hasta el día de hoy libre de enfermedad por suerte.

Los síntomas por lo cual fue detectado. Principalmente fueron los rasgos físicos que genera la enfermedad, también presentaba debilidad muscular , presión arterial alta y azúcar en sangre alta, perdida de potasio. Pero fue bastante dificil encontrar el tumor primario todos examenes de imágenes daban negativo hasta que llegó el PET TC con ga68. Ahí mostró la lesión en cabeza de páncreas sin comprender arterias, asique se pudo extirpar el tumor por completo. La vida le cambio para mejor , solo le quedan a veces dolores de huesos pero los puede llevar sin medicamentos.

Escribí es español, espero la traducción para ustedes sea entendible, soy de Buenos Aires Argentina. Saludos para todos, espero todos estén bien.