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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Mar 26 5:03pm | Replies (144)
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@ladyj5

This is the second time my asking this and no reply. I was diagnosed on July 10/2023 with pheochromocytoma by plasma blood work. My PCP have never treated this condition. My B/P is out of control. All the scans no tumor is found now what do we do next? Some days I can hardly function from taking so much pressure medications. Please respond.
LadyJ

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Replies to "This is the second time my asking this and no reply. I was diagnosed on July..."
Teresa, Volunteer Mentor | @hopeful33250 | Sep 16, 2023

Hello @ladyj5 and welcome to Mayo Connect. As you may know, those of us on Mayo Connect are not medical professionals, we are just patients like yourself who support and encourage each other. Based on what you have said, I would highly recommend that you seek a second opinion. At the very least, you should contact your doctor's office and ask for a referral to a specialist.

I would suggest that if you seek a second opinion, that you look for a multi-disciplinary medical center (like Mayo Clinic) or a university medical center in your area. If you would like a consultation at a Mayo Clinic facility, here is information for seeking an appointment, http://mayocl.in/1mtmR63.

I look forward to hearing from you again as you look for another doctor who can give you more help with this problem. Will you post again and let me know how you are doing?

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