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Pituitary tumor symptoms: joint, muscle and body aches
Hi. I am new to this. And not sure I'm in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I'm frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?
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Thank you so much. Tough road ahead
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1 ReactionBody aches pain muscle loss joint pain headaches hair loss extreme Fatique easy bruising weight gain in mid section and more all caused by pituatary tumor. I have Cushings and it took 4 to 5 years to get diagnosed. Hang in there and be strong!
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1 ReactionYes 3 dexometsone suppression test. 24 saliva 2 day cortisol, MRI all at mayo in jacksonville
God bless and keep you. In Korea, he saved me. He does exist. Be pro-active for yourself. Seek 2nd, 3rd. or 4th opinions if necessary After all, who know as much as you do?
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1 Reaction@cheryl1 She took Metformin too. She is a very strong person -we couldn’t believe how tough she was when going through this horrible illness. You are strong too- see what you have been through already!
There is a Cushing’s group on Fb by the way.
I would appreciate it very much if you would post a brief update now and then when you have the energy!
1000mg metformin twice a day. How is your daughter? She has and must be one of the strongest of the young for what she is going through. I don't know if I am that strong. Don't think so. Cheryl
@cheryl1 - hang in there! Hope they can locate tumor soon so you can get rid of it. Do you take anything for the blood sugar? My daughter had to take insulin Up to her surgery- her sugar went back down at once postop.
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1 ReactionYes MRI cortisol and acth. Dexamethasone suppression 3 times. MRI done locally in lake county and mri done at Mayo. Both showed tumor/ cysts. Dr Chaichanna did pss Dec 3rd. Removed tissue in area. Did not stain for acth. My levels are worse now and my glucose is horrible since procedure. The pathology report states tissue of pituatary. Going for ipss scheduled march 12th at mayo in jacksonville. I feel like I am slowly dying and have no life. Cheryl
@cheryl1 - Did you get the cortisol and ACTH testing done in Jacksonville? Endocrinologist? Any MRI yet?
@cheryl1 - Thank you for your kind words! You are right- to see your child go through this is a nightmare.