Pituitary macroadenoma tumor and short term memory loss. Help!!

Posted by mrcampbell @mrcampbell, Mon, Mar 25 2:21pm

Hello. I am desperate for advice. I had a large pituitary macroadenoma removed on 1/1/2019. The surgeon got it all out. Before the surgery, he said there shouldn’t be any complications post op. I had and am still having lots of issues. Tens days post op they discovered I had hospital acquired menigitis. They took care of that with antibiotics. I also had DI that turned into SIADH. I’m on a loose fluid restriction but my sodium bottoms out easily. I am extremely lethargic all the time. But the worse is short term memory loss and feeling like I’m in a fog all day. Sometimes I can’t remember things from one day to the next. I am an RN and am devastated. I was in perfect health till all this happened. I found a thread on here and have tried to reply but not having any luck. The thread had these names in it @dawnpereda @kdubois. This thread mentioned about seeing a neuropsychologist who could do cognitive behavioral therapy. I am willing to do anything. Does anyone have any suggestions. I just want my life back. Thank you in advance for any suggestions.

Hi,
I'm the Dawn Pereda you are referring to. I am also a nurse and I suffered from a brain injury. This brain injury has left me with some memory deficits. I have completed brain rehab therapy at the Mayo Clinic in Rochester, MN. If you would like to have a further discussion with me, please feel free to contact me by private message on Connect.
Wishing you the best through this awkward journey, Dawn

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Hi
dawnpereda@dawnpereda
I may help you as a reader and not as a professional surgeon, As you said you did a surgery and post op you come face to face with what you said ( I am desperate…) which means for me a hard feelings and actions accompanied every day life activities. I hope you become better and better. What I can say but you do not have to follow, many steps might improve short memory: 1. change your work shift time. 2, take (after checking with your doctor) some allowed drugs that sold over the counter to improve short memory. 3. try to improve your meals (how it is cooked and what includes).4, look at the persons with similar age who have same problems in their short memory and learn from their therapies. I wish you great life!

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@1000016352

Hi
dawnpereda@dawnpereda
I may help you as a reader and not as a professional surgeon, As you said you did a surgery and post op you come face to face with what you said ( I am desperate…) which means for me a hard feelings and actions accompanied every day life activities. I hope you become better and better. What I can say but you do not have to follow, many steps might improve short memory: 1. change your work shift time. 2, take (after checking with your doctor) some allowed drugs that sold over the counter to improve short memory. 3. try to improve your meals (how it is cooked and what includes).4, look at the persons with similar age who have same problems in their short memory and learn from their therapies. I wish you great life!

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Thank you for your suggestions. I always appreciate input and new ideas.
Dawn

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Hi @mrcampbell, I believe the discussion thread you were looking for with Dawn and KDubois is this one:
– Adult Life after a Traumatic Brain Injury (TBI) https://connect.mayoclinic.org/discussion/adult-life-after-a-tbi/
It's a great conversation that talks about success with cognitive behaviorial therapy for memory issues among other things

I'm glad that you started this discussion specific to pituitary tumor, fatigue and short-term memory loss. You'll notice that I moved your thread to the Brain Tumor group (https://connect.mayoclinic.org/group/brain-tumor-support-group/). There are quite a few discussions related to pituitary adenomas in this group. Please browse the topics.
I'd also like to introduce you to @gemttaz @dmedina71 @socannez @sandysdoves and @remsen, who might have experiences to share about short term memory loss.

While @dawnpereda generously offers for you to contact her by private message, I'd like to underline that by sharing in the community discussions, your posts help many who are looking for connection and the experiences of others.
MRCampbell, did your care team suggest that the memory issues are long-term? You didn't have surgery that long ago. What rehab options have been offered?

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