Anyone diagnosed with Phyllodes tumor?

Posted by johnsoncs1 @johnsoncs1, Feb 25, 2021

Looking to start a discussion for anyone that has been diagnosed with Phyllodes tumor in breast or prostate.

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@ssinkey

I am so sorry you are going through that. I definitely understand the misery of the waiting game. I get my pathology results back tomorrow morning, and I am so nervous. I did want to ask how did you get them to send results to mayo clinic for a second opinion. I am waiting my results to be send for a second opinion as well?

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@ssinkey, can you share an update? Were you able to get your results sent to Mayo Clinic for a second opinion? If not yet, let me know. You don't have to have your doctor do it. You can submit a request yourself if you wish. Read more how here: http://mayocl.in/1mtmR63

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I was diagnosed with benign phyllodes tumor 2019 after its aggressively growe, I had full mastectomy 2022 and then I discovered it is malignant. Now my surgen urgent me to do radiation,but i am scared that it might damage my skin and may prevent me from getting reconstruction. Do anyone had this radiation treatment and reconstruction well.

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@malyah

I was diagnosed with benign phyllodes tumor 2019 after its aggressively growe, I had full mastectomy 2022 and then I discovered it is malignant. Now my surgen urgent me to do radiation,but i am scared that it might damage my skin and may prevent me from getting reconstruction. Do anyone had this radiation treatment and reconstruction well.

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Hi @malyah, some surgeons recommend waiting to do reconstrution until about radiation. Radiation therapy can cause undesirable changes to an implant reconstruction, so you may be better to have radiation first.

You may be interested in joining this related discussion:
– Mastectomy and breast reconstruction pros and cons? https://connect.mayoclinic.org/discussion/mastectomy-1

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