Phrenic Nerve damage and paralyzed diaphragm: Anyone else have this?

@giller198
Hello, I saw your question about mobilizing the diaphragm and my physical therapist has done this with me and I breathe better after treatment. You might just have a physical problem with breathing since they ruled out a nerve problem. A lot of doctors are not aware of how fascia works since it hasn't been in the news until recently. I also swim which helps my lung function.

I've had some breathing problems with not using the lower portion of my left lung and for me it seems to be due to thoracic outlet syndrome which causes tightness through one side of my neck and chest to my hip which interferes with expanding my rib cage properly on that side and I have asthma, and that can make me breathe using neck muscles and the upper parts of my lungs. Sometimes ribs twist a bit because of the tightness. This problem causes phlegm to be hard to expel and that leads to one sided chest infections on the left side. I have a great physical therapist who is also expert level in myofascial release work trained in the John Barnes methods. My PT has manually released the tightness in my diaphragm to get it moving properly again. It's basically stretching the fascia similar to the way a Yoga stretch works. Having surgery creates scar tissue in the fascia, which creates tightness and adhesions. The lung tissue itself is nearly all fascial tissue and blood supply. If you haven't tried this type of therapy, it may be beneficial.

I had spine surgery at Mayo around the same time as your surgery, and the scar tissue increased the issues with thoracic outlet syndrome compressing nerves to my arms, and because I was in a neck brace for 4 months, I had to stop my physical therapy for awhile, but I have made progress again. TOS creates nerves trapped by the pressure of going through small spaces in-between the rib cage and collar bone and is made worse by poor posture like slouching with a forward head position. Forward posture also compresses the chest a bit. TOS causes tight muscles in the side of the neck, and because my spine surgery incision is very close to that area, it increased tightness which pulls everywhere.

I've worked with the MFR therapy for 4 years for TOS (which was interrupted by spine surgery) and it takes time to work through the layers of tight tissue. There are a lot of ways to self treat and I can feel the fascia pull from my neck down through my hips to my feet. It really is a network of webbing that interconnects everything in your body, and researchers now are starting to recognize it as another organ that they are calling the interstitium. The living fascia changes from a semi solid to a liquid state as it stretches and reforms itself. When you see the cob-web stuff when skinning a raw chicken, you're looking at fascia. The muscles are bound by the fascia that weaves through them which interconnects about everything in the body and tight fascia stops things from moving correctly and changes body alignment. I have not seen a physical therapist specializing in lung function. On days when my neck is tight and feel the pull of my surgery scar, I just stretch it out.

You can find information on MFR at https://myofascialrelease.com/. The website has a list of therapists, but you can also call Therapy on the Rocks (John Barnes practice) in Sedona, AZ and ask for names because not everyone pays to be listed on the website.

Here is some research about fascia https://myofascialrelease.com/downloads/articles/Structure_and_Distribution_interstitium_human_tissues.pdf

@ssbionicknee I might suggest that you call Patient Relations or the Patient Experience Office at the hospital where you were treated.

Hi @colleenyoung. My surgery was Wednesday. I have some random memories of the surgery and I was in distress. I remember a man came to give me a breathing treatment and he was upset that they called him. I was in and out of it. I remember him telling me I needed to see a specialist and that this was not normal. I also remember being in the OR and being shaken a lot and hearing them try to wake me up. The doctor never said anything to my friend when he talked to her. I have really been out of it and my head is just starting to clear up. I was sedated with Versed and Fentanyl. I have had trouble waking up from Versed in the past so the combo really knocked me out. That is noted in my charts and I told the doctor that before surgery. This is the first time I have had trouble breathing. I have also been feeling sick to my stomach. I have had a metalic taste in my mouth, my ear felt fuzzy, and I have had sweats and chills. They are trying to play it down like I just had some trouble waking up and breathing. I need to know what really happened that day. I need to see a specialist about the hypoxia and then I am trying to figure out where to go from there. I really could use some advice.This was not at the Mayo Clinic. I am a long way from there. I also had a total knee replacement in May and it went well and I was alert afterwards.

@ssbionicknee, when was your surgery? Have you talked to your surgeon about your ongoing respiratory issues?

I just had shoulder surgery and was given a nerve block. I had trouble breathing and waking up. I was in recovery for about 6 hours and received a breathing treatment. I was just reading about Phrenic Nerve Damage and am wondering if that is what caused my problems. I am still having trouble breathing. I also noticed the symptoms for toxicity are what I have been having. Has anyone else had this happen from a nerve block.

what great news !!! weaned off oxygen... that is a big step !!!

@shilo14 I was happy to read your post that you went on an enjoyable vacation and hade a family reunion! Anytime you can get back a semblance of normal life is great for moral, even hearing about how others with the same health issues are successful at leading a "new" normal life is encouraging ! I plan on planting a few more perennials in the garden by the house. I work in my garden (even those further from the house) in several ways. My hose reaches about 2/3 down my garden or I tank a small tank out with me or on a good less humid day I go with out. Of course how long I stay out depends on how I feel and what method I use.

Sometimes I wonder if I am encouraging anyone or not with my life? It is great I have survived this long but can be difficult for the patients newer to this type of condition?injury? to accept this will be your new normal. I think it helps me to focus on what a gift I have been given just to be alive rather than what a struggle my life is. Most days my life is great ! It has taken me a long time to get to the point of speaking freely about my life at all and I think writing it down helps ME as much as anyone. What do you think?

Yes! Nine years! It is wonderful to hear that you are are still here and enjoying life! That is how I feel, just truly grateful to be able to experience what I still can, even if my reality is that I will not ever regain my ability to hije, bike, swim, and even just walk very far at all. I wasn't given any hope, and here I am.

Good morning Allison, I am for now weaned off oxygen. Previously, I had a large tank of liquid oxygen that NORCO would come and refill regularly. I could charge (fill) a portable backpack to take with me in the car. But for plane travel or extended travel to MD Anderson they'd assign me a POC. I would reserve both the portable oxygen concentrator and the batteries and the ac/dc adapter cord ahead of time and return it when I got back in town. For airline travel I had to complete paperwork (specific to each airline) and travel with enough charged batteries to cover my plane time. Much easier and safer than traveling with tanks. Sorry I've been so late to respond, we've attended a family reunion and then had company. Lovely time!

It has been determined between my heart surgeon and pulmonary doctor to much time elapsed from my heart valve surgery to when I started having breathing issues. It was about a fourteen month time interval. The doctors have ruled out phrenic nerve damage. Somehow I must have been doing something that caused damage with that right diaphragm.