Phrenic Nerve damage and paralyzed diaphragm: Anyone else have this?

Posted by jgreg1954 @jgreg1954, Nov 28, 2017

Phrenic nerve on the right side was destroyed due to radiation for breast cancer. Diaphragm is now paralyzed & taking away lung capacity. Anyone else experience this?

Interested in more discussions like this? Go to the Lung Health Support Group.

@mistekat

I had open heart 21 years ago. A cough started after that. I spent 10 years with a pulmonologist who would not listen. I found another pulmonologist who informed me about phrenic nerve
The cough is invasive and intense. Many times a day. It hurts and causes concern in others. Have talked with bot Mayo and Cleveland Clinic. They want me to see a pulmonologist there. They can't help. Is there anyone who specializes in phrenic nerve?

Jump to this post

Welcome to @mistekat. I'm not sure I understand. Both Mayo Clinic and Cleveland Clinic recommended to see a pulmonologist at their respective clinics or suggested you see someone local to you? Can you explain further?

REPLY

I had open heart 21 years ago. A cough started after that. I spent 10 years with a pulmonologist who would not listen. I found another pulmonologist who informed me about phrenic nerve
The cough is invasive and intense. Many times a day. It hurts and causes concern in others. Have talked with bot Mayo and Cleveland Clinic. They want me to see a pulmonologist there. They can't help. Is there anyone who specializes in phrenic nerve?

REPLY

@usmccam- Welcome to Mayo Connect. I'm glad that you found us. I know that after both of my lobectomies it felt as if I'd never be able to breathe. It's scary as hell. I encourage you to read the posts on this site. Also, what does your doctor say about this?

REPLY
@colleenyoung

Welcome to Connect, @jgreg1954 I'm tagging @allisonsnow who also has experience with phrenic nerve issues, not from radiation but rather from a tumor.

JGreg, it must be scary to have your diaphragm paralyzed and decreasing lung capacity. Are there lung or breathing exercises that might help like those that people with lung conditions do?

Jump to this post

There is nothing scarier than when you cannot take in a breath or breathe. All the treatments and exercises in the world do not help when you cannot breathe The more you try to breathe, the more paralyzed you become. It is beyond scary.

REPLY
@merpreb

Hello- I'd like to introduce @tboyd03. She is having problems and hopefully some of you might be able to help direct her in the right direction and offer some help!

Jump to this post

May I ask what kind of problems? Has it been confirmed a phrenic nerve?

REPLY

Hello- I'd like to introduce @tboyd03. She is having problems and hopefully some of you might be able to help direct her in the right direction and offer some help!

REPLY

Wishing everyone a Merry Christmas and a good New Year, take care

REPLY
@jenniferhunter

@giller198 I hope you feel better soon. Fascial work is amazing. Have them show you how you can do some of it at home so you can progress faster.

Jump to this post

Had some more of the Bowen technique on Monday. Haven't noticed any improvement in the pool. It make take some time. Therapist friend of mine did some fascial work on me today. Kind of wore me out. Maybe she didn't do it correctly. We will keep plugging along.

REPLY
@giller198

Well, forget the fascial blaster. The therapist I saw last week worked some using the Bowen Technique. It kind of uses a gentle approach like fascial. The therapist is going this week for more training. I go for session two in the morning. Have a good one.

Jump to this post

@giller198 I hope you feel better soon. Fascial work is amazing. Have them show you how you can do some of it at home so you can progress faster.

REPLY
Please sign in or register to post a reply.