Phrenic Nerve damage and paralyzed diaphragm: Anyone else have this?

Posted by jgreg1954 @jgreg1954, Nov 28, 2017

Phrenic nerve on the right side was destroyed due to radiation for breast cancer. Diaphragm is now paralyzed & taking away lung capacity. Anyone else experience this?

Interested in more discussions like this? Go to the Lung Health Support Group.

Profile picture for seniordon09 @seniordon09

I had cervical spine surgery 5 years ago it failed ! About 1 year ago the left side of my diaphragm got paralyzed. I am wanting to know if my breathlessness might be because my phrenic nerve might be damaged ?

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@seniordon09 You may be interested in these discussions where members discuss the phrenic nerve, and also a surgeon who does nerve grafting to replace a a malfunctioning phrenic nerve.

- Lung Health group\ "Mysterious shortness of breath: What has helped you?"
https://connect.mayoclinic.org/discussion/mysterious-shortness-of-breath/
and

- Lung Health\ "Paralyzed right side of diaphragm: How to treat?"
https://connect.mayoclinic.org/discussion/paralyzed-right-side-of-diaphragm/
Have you discussed a possible nerve injury with your spine surgeon, or if that isn't possible, have you sought a second opinion from another spine specialist or neurologist?

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I had cervical spine surgery 5 years ago it failed ! About 1 year ago the left side of my diaphragm got paralyzed. I am wanting to know if my breathlessness might be because my phrenic nerve might be damaged ?

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Profile picture for jwatermann @jwatermann

I am getting ready to have a Sniff test done. I have a ting left lung.

We are confirming that my left lung is paralyzed.

I have trouble breathing. Simply laying down is a challenge.

My doctor suspects my Phrenic nerve has been damaged which caused the paralysis. I am hoping to get the test done soon. I really want to try stem cell therapy. Has anyone else tried this?

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@watermann. I haven't heard about using stem cells to treat a damaged phrenic nerve or paralyzed diaphragm. Would you please post information about it? Thanks. I'm sure the 950+ on the facebook page for people with paralyzed diaphragms will be really interested in it too. I'll post it there or you might join the group and paste it there yourself if you're so inclined. It's a great group, and I've learned so much about this condition, dealing with symptoms, and treatment options. Using stem cells is a new to me intriguing possibility, and I wonder who is doing it and how it works. Thanks. Nancy

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Profile picture for jimrichards @jimrichards

Do you know what caused the left lung paralysis?

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@jimrichards . I don't know the cause of my left paralyzed diaphragm for sure, and it's not something I spend a lot of time thinking about. The damage to my phrenic nerve that caused it to be paralyzed might have been an auto accident, fall down a flight of stairs, chiropractic manipulation, another operation, a virus, immunizations, etc. If you haven't joined, I really recommend you join the facebook group for people with paralyzed diaphragms. There are over 950 people on it with paralyzed diaphragms, which is actually a pretty rare condition. I've learned so much from them about the condition, how to deal with symptoms, etc... and gotten wonderful support. Please let me know if you have other questions. Good luck! Nancy

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Profile picture for nla4625 @nla4625

@firefighter66. I'm not sure what your test results mean and hope you asked or will ask the doctor who ordered it to explain the results to you. I went back and read my SNIFF test results. I had no movement of my left diaphragm during regular breathing and paradoxical movement with the SNIFF deep rapid breathing, which indicated my left diaphragm was paralyzed. The report was that direct, which yours wasn't. I hope you get the help you need and deserve soon! Take care. Nancy

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Do you know what caused the left lung paralysis?

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Hi,
My name is Jim and I would like to know if there have been any cases where the phrenic nerve has been damaged, resulting in paralysis to a lung from having anesthesia during a surgery? This happened to me but I don't know why my left lung is paralyzed.

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I am getting ready to have a Sniff test done. I have a ting left lung.

We are confirming that my left lung is paralyzed.

I have trouble breathing. Simply laying down is a challenge.

My doctor suspects my Phrenic nerve has been damaged which caused the paralysis. I am hoping to get the test done soon. I really want to try stem cell therapy. Has anyone else tried this?

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Profile picture for jwatermann @jwatermann

I am experiencing this.

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@jwatermann Hello, I wanted to welcome you to Connect. Did you have a question for other members who may be able to help from their own experiences? Did you have some more specific information that you wanted to share in the community? Are you being treated for a condition?

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Profile picture for mbe111 @mbe111

I had a Peripheral Nerve Sheath Tumor that Doctors said should be removed. The tumor was in my Ulnar nerve for my left arm and hand, about 6 inches from my spine, close to my heart, above my left lung and near my Phrenic nerve. The fear of a nerve sheath rupture spreading cancer cells freely to such nearby important organs or following the nerve back to my spine or brain was cause for surgery to remove the tumor.
Surgery was followed up with radiation in the brachial plexus area as additional safeguard in my treatment. Somehow, through it all my Phrenic nerve was damaged that controls the diaphragm on my left lung, leaving it not functioning. It is an unanswered question if the nerve was damaged during surgery or from radiation after treatments. The good news is that my body must compensate for the loss of the diaphragm; I have walked, ran, hiked, worked as much as I want to at my age. (69)
Tests show the rest of my lungs are healthy and there is no recurrence of cancer in the area.
It is interesting to note that the medical term for my diagnosis of a "Malignant Peripheral Nerve Sheath Tumor" is followed with this phrase "as a Result from Previous Radiation"
I was treated for throat cancer 5 years earlier and it included Foton Radiation treatments. It is believed that those Radiation treatments caused the tumor to develop within the nerve sheath over the next 5 years. It is very rare occurrence, near 1 in 1 million chances of this happening to me, I was told.
The lung diaphragm was of little consequence; removing the nerve caused the loss of control and feeling on my left arm and hand. I use to be left hand dominant, I am now learning to be right handed.

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Hi @mbe111, please accept my belated welcome. Wow, you've had quite the journey with multiple cancers. I'd like to invite you also join the Lung Cancer and the Head & Neck Cancer groups. I'm confident that your experiences would be helpful to newly diagnosed members.
- Lung Cancer https://connect.mayoclinic.org/group/lung-cancer/
- Head & Neck Cancer https://connect.mayoclinic.org/group/head-neck-cancer/

How long ago was the nerve removed? How are doing with learning to be right-handed?

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