Pernicious Anemia or Pituitary Tumor?
Hi guys, I'm new to Mayo. Today is my first initial phone call to get set up and everything. I'm very overwhelmed but I feel as if being under the care of these professionals will lift that feeling. I'm 22, almost 23, and I've been misdiagnosed for the last 5-7 years. At first I was diagnosed with iron deficiency anemia. As do all other young females with heavy menstrual cycles do, at least I thought. But I never had normal periods anyway so that didn't make sense to me. They threw me under an umbrella of patients. I have had experienced absolutely no energy for the last half decade of my life. I've missed out on life events, jobs, etc because of my lack of energy. I had to undergo iron infusions, B12 injections and the whole 9 yards. But my doctor just won't listen. My iron has been on the lower side but my saturation is always below 20%. My lowest result was 4%. I have high Eosinophils and Monocytes. I've had a bone marrow biopsy with slight abnormalities but my doctors keep wanting to just treat me for anemia. I have a history of Pituitary Tumors that run in my moms side of family. My mom has one herself, one of her brothers and her dad all had pituitary adenomas with my uncle being the most severe and having to get it removed due to increasing enlargement and hormonal issues. They've done a MRI about 4 years ago and rejects my requests for an updated one. I originally got told from my eye doctor to get an MRI because of my decreased eyesight over 2 years and my history of pituitary adenomas. But once again, my doctors will only treat me for anemia. Even though my iron is within normal range!! Last year I had to stop taking birth control due to a "heart disease" that I was unaware of. I have always had a thinner physique but when I stopped in August of 2020 weighing 130lbs my whole life. I gained 40lbs in mostly my breasts and stomach and around the top of my back and no one seemed to care. I feel like I run one errand and I feel like I ran a whole marathon, but I'm only 22. Someone please help me get my life back or explain your experiences if you have had these same issues. Thank you so much for the support.