Peritoneal Cancer: Anyone else?

Posted by turbo48 @turbo48, Jan 24, 2020

Looking for any help with this thank you

Interested in more discussions like this? Go to the Cancer Support Group.

I was diagnosed with this on February 7th. I finally get my biopsy results this evening. It’s been along 2 months. My cancer was only found because my Dr sent me for an ultrasound for suspected gallstones. Which is when they found my 7x7x10cm tumour.

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Profile picture for gramma22 @gramma22

newely diagnosed with the peritoneal ca. just had pet scan to determine the actual oragin of the cancer. maybe dumb question. Many years ago (30+yrs) i had a hysterectomy. Few years later my overys needed to come out. Was not a cancer problem. But they could not find one of the ovaries. Can that ovary still be there and become cancerous

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@gramma22 This diagnosis must have come as a big shock to you. No one wants to hear "cancer" for a diagnosis. There are so many advances that occur almost daily that many cancers can be treated like a chronic condition that needs to be watched and treated. And people live for many years with the cancer.

We aren't medical professionals on Mayo Clinic Connect and so I couldn't say whether peritoneal cancer is related to an ovary. Here is a good explanation of peritoneal cancer that might help to answer some of your questions.

Primary Peritoneal Cancer

-- https://my.clevelandclinic.org/health/diseases/22721-primary-peritoneal-cancer

Have you already talked with your doctor about your medical history? The PET Scan will help your cancer care team in planning for your treatment. Are you seeing an oncologist?

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Profile picture for gramma22 @gramma22

newely diagnosed with the peritoneal ca. just had pet scan to determine the actual oragin of the cancer. maybe dumb question. Many years ago (30+yrs) i had a hysterectomy. Few years later my overys needed to come out. Was not a cancer problem. But they could not find one of the ovaries. Can that ovary still be there and become cancerous

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According to what I have read you can get peritoneal CA if you’ve had your ovaries removed. Praying for you. 🙏🏻🙏🏻🙏🏻

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newely diagnosed with the peritoneal ca. just had pet scan to determine the actual oragin of the cancer. maybe dumb question. Many years ago (30+yrs) i had a hysterectomy. Few years later my overys needed to come out. Was not a cancer problem. But they could not find one of the ovaries. Can that ovary still be there and become cancerous

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Profile picture for pamfclark @pamfclark

I was dx in Jan 2022 with Primary Peritoneal Cancer. I have battled with repeated UTIs that have caused me to be hospitalized 5 times which delays my Chemo treatments. At the Mayo Clinic now to discuss taking the chemo pill. Anyone else have similar issues?

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Hi Pam, please accept my belated welcome. It can be so stressful to have symptoms that cause delays in chemo treatment. I'm sure you just want to stay on track and get rid of this darn cancer.

How did the appointment at Mayo turn out? Is oral chemo a good option for you?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.

Turbo, what treatment have you had? How are you doing?

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I was dx in Jan 2022 with Primary Peritoneal Cancer. I have battled with repeated UTIs that have caused me to be hospitalized 5 times which delays my Chemo treatments. At the Mayo Clinic now to discuss taking the chemo pill. Anyone else have similar issues?

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Profile picture for dorcarvajal @dorcarvajal

Thank you. Since I wrote it, I continue to be contacted by families all over the world seeking information about this rare disease. There is a strong need for up to date guides.

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Have you heard of the book: “Unwell Women: Misdiagnosis and Myth in a Mam-made World” ?

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@dorcarvajal What an excellent article! Thank you for writing it, although I’m sorry about the circumstances that got you there. Becky

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Thank you. Since I wrote it, I continue to be contacted by families all over the world seeking information about this rare disease. There is a strong need for up to date guides.

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@dorcarvajal What an excellent article! Thank you for writing it, although I’m sorry about the circumstances that got you there. Becky

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Profile picture for polkagal @polkagal

Congratulations @dorcarvajal!!! You have earned your right to savor your exodus. I truly understand what a milestone this is, as I look forward to the day when I can join you. My 3-year mark will be this fall, I am in remission with NED after a similar treatment experience as yours, although for a different cancer, and my doctors are discussing removing my port. Here's to your continued good health 🙂

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Thanks @polkagal. Thrilled for you.

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