Dntsass01, I’m sure @scjoyce will appreciate connecting with you. I realize it was 20 years ago, but do you recall what the recovery from surgery was like for your son’s peritoneal cancer?
My husband has had 3 surgeries in the last 10 years. His last was 2018. Recovery has varied each time. His number one recommendation is to walk and build up your heart and lung strength before surgery. He feels that is so beneficial in recovery. He was more fit before each surgery. Also, walking as soon as you can after surgery. A high protein diet helped with recovery and he had to limit ruffage after each surgery. Dairy also became an issue after surgery #2, so he no longer eats any dairy.
My husband is on year 11 with Pseudomyxoma Peritonei, mucinous carcinoma of the appendix.
He has had three cytoreduction surgeries (debulking) each listing 12-15 hours. He has had one with EPIC heated Chemo, one with HIPEC and one without chemo.
Recovery has varied. After the first surgery, his recovery was a good 6 months. After the second surgery with HIPEC, he had to adjust some of his eating habits as he could no longer tolerate dairy. After the third, he has a colostomy and some post op issues with a rectal fistula. However, he felt great.
As for now, the mucin is back, but growing slowly. He lives a full life and we are blessed to have had the best surgeons care for him.
This picture was taken a couple weeks ago!
I would be happy to answer any questions or just be a sounding block from people living with this disease.
Dntsass01, I’m sure @scjoyce will appreciate connecting with you. I realize it was 20 years ago, but do you recall what the recovery from surgery was like for your son’s peritoneal cancer?
Hello @scjoyce and welcome to Mayo Clinic Connect. I appreciate your post and you sharing about your cancer diagnoses. If you care to share more, how long ago was your surgery? How is your recovery coming along?
I look forward to hearing from you again. Will you post an update?
Hi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.
Turbo, what treatment have you had? How are you doing?
Colleen Young, Connect Director | @colleenyoung | Apr 28, 2021
Hi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.
Turbo, what treatment have you had? How are you doing?
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My husband has had 3 surgeries in the last 10 years. His last was 2018. Recovery has varied each time. His number one recommendation is to walk and build up your heart and lung strength before surgery. He feels that is so beneficial in recovery. He was more fit before each surgery. Also, walking as soon as you can after surgery. A high protein diet helped with recovery and he had to limit ruffage after each surgery. Dairy also became an issue after surgery #2, so he no longer eats any dairy.
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5 ReactionsMy husband is on year 11 with Pseudomyxoma Peritonei, mucinous carcinoma of the appendix.
He has had three cytoreduction surgeries (debulking) each listing 12-15 hours. He has had one with EPIC heated Chemo, one with HIPEC and one without chemo.
Recovery has varied. After the first surgery, his recovery was a good 6 months. After the second surgery with HIPEC, he had to adjust some of his eating habits as he could no longer tolerate dairy. After the third, he has a colostomy and some post op issues with a rectal fistula. However, he felt great.
As for now, the mucin is back, but growing slowly. He lives a full life and we are blessed to have had the best surgeons care for him.
This picture was taken a couple weeks ago!
I would be happy to answer any questions or just be a sounding block from people living with this disease.
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Like -
Helpful -
Hug
11 ReactionsDntsass01, I’m sure @scjoyce will appreciate connecting with you. I realize it was 20 years ago, but do you recall what the recovery from surgery was like for your son’s peritoneal cancer?
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1 ReactionOur son had surgery for peritoneal cancer, which is even more rare in men. He was 18 at the time. This was 20 years ago.
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6 ReactionsI was hoping to hear from other patients with peritoneal cacinomatosis. On their recovery process
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2 ReactionsHello @scjoyce and welcome to Mayo Clinic Connect. I appreciate your post and you sharing about your cancer diagnoses. If you care to share more, how long ago was your surgery? How is your recovery coming along?
I look forward to hearing from you again. Will you post an update?
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Hug
2 ReactionsI had surgery for stage 3 ovarian cancer and peritoneal cancer
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4 ReactionsHi @turbo48, I moved your message from the Blood Cancers group to the Cancer group (https://connect.mayoclinic.org/group/cancer/). Peritoneal cancer is a rare cancer that develops in a thin layer of tissue that lines the abdomen. It also covers the uterus, bladder, and rectum. I also added it to the Gynecological Cancer group (https://connect.mayoclinic.org/group/gynecologic-cancer/) since peritoneal cancer acts and looks like ovarian cancer.
Turbo, what treatment have you had? How are you doing?
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Hug
5 Reactions