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Peritoneal Cancer: Anyone else?
Cancer | Last Active: Nov 22, 2023 | Replies (61)Comment receiving replies
My husband is on year 11 with Pseudomyxoma Peritonei, mucinous carcinoma of the appendix.
He has had three cytoreduction surgeries (debulking) each listing 12-15 hours. He has had one with EPIC heated Chemo, one with HIPEC and one without chemo.
Recovery has varied. After the first surgery, his recovery was a good 6 months. After the second surgery with HIPEC, he had to adjust some of his eating habits as he could no longer tolerate dairy. After the third, he has a colostomy and some post op issues with a rectal fistula. However, he felt great.
As for now, the mucin is back, but growing slowly. He lives a full life and we are blessed to have had the best surgeons care for him.
This picture was taken a couple weeks ago!
I would be happy to answer any questions or just be a sounding block from people living with this disease.
Replies to "My husband is on year 11 with Pseudomyxoma Peritonei, mucinous carcinoma of the appendix. He has..."
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Hi Jan, what a story. And what a fish (not a fish story, lol). Like @dntsass01's son's story, your husband's experiences brings hope. I really appreciate your joining this discussion group. I'm sure that @turbo48 @scjoyce and @dorcarvajal will appreciate bouncing things off you and having your support.
Your participation would also be very welcome in the ostomy group here:
- Ostomy https://connect.mayoclinic.org/group/ostomy/
How are you doing with the return of mucin and what lies ahead?