Peripheral Neuropathy and benign fasciculation syndrome.

Posted by sherryw @sherryw, Aug 5, 2019

My neurologist diagnosed me with small fiber peripheral neuropathy. He states i also have BFS (benign fasciculation syndrome.) My legs have weird sensations/zaps/pops, especially at night or when I am lying down. Do others have this problem?

@jesfactsmon

@sparkysparks
I am continuing to be amazed at all the things that cause neuropathy. Oxalates? I hadn't heard that before. One to add to the list I am keeping. Glad you stopped the b6. My wife recently has cut out any b-complex supplements because they all contain at least some b6 and it seemed apparent that she was reacting to it. And she has always, to this point, been a big advocate of b vitamins, but not any longer if they contain b6. You had mentioned in your first post that proprioception was faulty in your right leg. I was not aware of that condition before. Can you describe what that feels like? Does it happen still or is it under control.

Would you say that your symptoms are significantly better now that you have addressed some of the causes (fish, oxalates, b6, etc.)? Is your situation less dire now than before? Is your bfs/cfs better now? Very interested in you and your case, thanks for posting. Hank

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@sparkysparks and Hank and gang, I just found out that I too have proprioception a few days ago. I thought the Gabapentin was making me lose my perception of space and I am almost falling a lot and bumping into things a lot so I asked my neurologist about this and she told me I have proprioception! I asked how she knew this and she told me when she did the vibration test on my lower legs and feet, that I did not feel them! This was a long time ago! It is so strange how providers do tests on you, even the support staff that takes your Vital Signs and puts you in a room do not tell you what the results are! My goodness! Blood out of a turnip LOL! I have the same questions that Hank does about how you are doing since getting those things out of your diet and body. I hope you are seeing much improvement. Many blessings to all, Sunny flower

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To anyone. Why would a doctor not tell you about something like this?

Liked by sunnyflower

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@bustrbrwn22

To anyone. Why would a doctor not tell you about something like this?

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Probably bc there were so many things we talked about at the time? Who knows. S

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I think this discussion will interest some of you.
– What exactly is proprioception? Anyone with experiences? https://connect.mayoclinic.org/discussion/propriociption/

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