Peripheral nerve stimulators

Posted by sparshall @sparshall, Jan 14, 2020

This is a long shot, but I’m looking for people who have used implanted peripheral nerve stimulators (PNS) to control nerve pain. They block the pain signal to the brain. Stimrouter and Stimwave are major brands. These are NOT the same thing as spinal cord stimulators, of which there are many brands. I’m about to have a Stimwave implanted to block intractable pelvic and leg nerve pain.

@faithwalker007

I'm humbled by your actions, LoriRenee. I don't deserve it. The first book I ever wrote was actually To Soar on Eagles Wings although it wasn't the first published. I only rewrote it three times though. LOL
Beast of Stratton was the first published. To Soar is the first book in the Snowy Range Chronicles, and Through Raging Waters is the second. I'm still working on the third. Racing Hearts is the book I wrote that is based on our only pregnancy and delivery which occurred in Jackson, WY, and is as close to fact as I could comfortably get with a few character changes and flubs and bubs to keep people guessing.
All of my books that take place in Wyoming have events that I've witnessed or read about in the newspapers. I did not exaggerate any event, natural or created by man although I've been accused of doing it. Wyoming is a volatile but beautiful place. 😉
Through Raging Waters is action-packed but fun to read. 😉
Thank you for your wonderful gesture. You are truly a beautiful soul.
In Christ,
Renee

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@faithwalker @lorirenee1
Hey you two, I have enjoyed your interactions here. Really, it is so sweet! You both suffer from unfathomable pain and yet it does not diminish your capacity to find love, caring and joy in your lives. You are both very inspiring to me. And you certainly put me in the Christmas mood. Best, Hank

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@avmcbellar

Hi Lori @lorirenee1 I would think the connections would be the same with the stimulator no matter which lead is used. The difference with the leads may be the width and length. I know in a circuit the length and diameter of a wire can cause a different output. The longer the wire the resistance increases. As the diameter increases, the resistance decreases. Not sure if that output will be significant enough for the stimulator. Will be interesting what you find out from your experience. Worth a follow up anyways. Toni

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@avmcbellar Hi Toni! Your knowledge helps so much! I appreciate your input about my stimulator. I have an appt with my Pain doc in a few weeks to discuss the stimulator, and will ask about the leads. This is all just too much! I hope you are ok?????? Love to you, Lori

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@jesfactsmon

@faithwalker @lorirenee1
Hey you two, I have enjoyed your interactions here. Really, it is so sweet! You both suffer from unfathomable pain and yet it does not diminish your capacity to find love, caring and joy in your lives. You are both very inspiring to me. And you certainly put me in the Christmas mood. Best, Hank

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@jesfactsmon Hi, Hank! My Grandma used to say, "Good is good!" Such a simple statement. When a person is so kind, so good, such as Renee, such as you, it helps me to endure my pain. I hang on to that goodness. I have to find thanks in spite of pain, or I would be in a constant state of despair. Glad I can inspire you. I really am not all that good at inspiring myself, but I sure try! Love to you, always, Lori

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@faithwalker007

I'm humbled by your actions, LoriRenee. I don't deserve it. The first book I ever wrote was actually To Soar on Eagles Wings although it wasn't the first published. I only rewrote it three times though. LOL
Beast of Stratton was the first published. To Soar is the first book in the Snowy Range Chronicles, and Through Raging Waters is the second. I'm still working on the third. Racing Hearts is the book I wrote that is based on our only pregnancy and delivery which occurred in Jackson, WY, and is as close to fact as I could comfortably get with a few character changes and flubs and bubs to keep people guessing.
All of my books that take place in Wyoming have events that I've witnessed or read about in the newspapers. I did not exaggerate any event, natural or created by man although I've been accused of doing it. Wyoming is a volatile but beautiful place. 😉
Through Raging Waters is action-packed but fun to read. 😉
Thank you for your wonderful gesture. You are truly a beautiful soul.
In Christ,
Renee

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@faithwalker Renee, You live with such utter pain. Your pain descriptions have floored me, but you still manage to give so much to others. I had to translate my appreciation into something tangible. What you have given to others is huge. As far as your books, they all sound so good! I know I did want to buy The Beast of Stratton, but it was less expensive than the others, and I would have wasted money on shipping, so I bought the more expensive ones. What thrills me now, is that I do know that I bought To Soar on Eagles Wings, and I do believe that the first book a person writes, is usually his best. In your case, you wrote it several times!!! I think the other book I bought was Through Raging Waters, but not sure! Will get both from Amazon in a few days. I think we have to appreciate others in this life, for what else, is life really for? Thanks from the heart. Love to you, Lori

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@lorirenee1

@jesfactsmon Hi, Hank! My Grandma used to say, "Good is good!" Such a simple statement. When a person is so kind, so good, such as Renee, such as you, it helps me to endure my pain. I hang on to that goodness. I have to find thanks in spite of pain, or I would be in a constant state of despair. Glad I can inspire you. I really am not all that good at inspiring myself, but I sure try! Love to you, always, Lori

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God is good… all the time!

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@lorirenee1

@avmcbellar Hi Toni! Your knowledge helps so much! I appreciate your input about my stimulator. I have an appt with my Pain doc in a few weeks to discuss the stimulator, and will ask about the leads. This is all just too much! I hope you are ok?????? Love to you, Lori

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@lorirenee1 no worries, thank you. I am glad someone had info on stimulators to share. I always use my experiences to learn new things. I have never had a stimulator.
Let’s hope there was no additional pain caused from a wrong connection. Your appt can’t come soon enough. On the bright side, you will be able to help others after going through this experience. Best to you. Toni

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@lorirenee1

@avmcbellar Hi again, Tony, We certainly never know when or why health challenges come our way! You took such good care of yourself, you now take such good care of yourself, and yet, when your brain signals, bodily sensors don't work right, we don't work right. Yes, simple things become a challenge, and life can change in an instant. Would you have ever believed the changes you have gone through? I know I wouldn't have. I am at least glad that your stomach is doing better and your motion sickness is a bit less from not doing your eye exercises. I hope that you can get your eye surgery to help you. I have become so damn fearful of surgery, but sometimes it does help! Maybe after Covid, you can do your surgery? As far as living without depth perception, my eye doctor is amazed that I never saw double, but my brain adjusted itself to my eye problem. My eye doc also says I see things flatter than they really are, but I don't know the difference! I have always lived with these eyes of mine. I do notice however, that I tend to pour things too full or too empty, drive only locally, as I just don't see space all that well. I stay on roads I know and never drive in darkness. I also grew up with an eye specialist, and did regular eye exercises. I don't remember why! I will look at that VR therapy site again, and see if I can do something without the goggles. Anything to distract from pain! As far as sleeping with a fan, yes, I do, and sleep with icepacks on my shins. Seeing the Pain Doc in a few weeks to see why I have all this new pain, but he does say that sometimes the pain stimulator electricity can cause pain. Oh joy. Anyway, thanks so much for reaching out to me. Mayo Connect has had me meet really good people. That is the one joy of being sick. Nothing else. Love to you, Lori

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Hi @lorirenee1. You are right! There is no guarantee in anything we do. I knew that growing up when I was being careful regarding my health. There are some things we can never control but I did as much as I could. I figured if research proved an illness was related to a behavior then at least I could prevent some health issues. Little did I know I would have an aneurysm when I took care of myself through diet and exercise to avoid a stroke. Well, my effort did not entirely go to waste. My daughter would say, “ma, you were ahead of your time then “ to describe my behavior. What people do now I did forty years ago. It didn’t bother me at all that I was the only one because I was serious. Although it was more difficult because not much was available to purchase ready made, it felt right for me. Currently I am under a health study and hope to help others through my experiences. I credit my health habits for my AVM survival. When I hear of others passing due to their AVM I can relate. Recently on the local news, a 17 year old victim was shown. He was a high school senior football player who was expected to play for his college team the following year. Instead he collapsed on the field during football practice. A life that ended too early. He was the oldest living sibling. Yes, life can be so unfair but the ones remaining can still provide assistance in society. Although difficult, it can be in different ways. No matter what, we owe it to ourselves and society to have a better life and to help others. So keep on trying. Do your best. Time will go by regardless. Why not do something positive during that time. All my life I have helped my seniors and now I continue to find new ways to help our younger generations. I am hopeful in finding VR helpful with health issues. More studies will need to be conducted. I believe VR will become more popular in the coming years. Perhaps this pandemic will be the cause. Take care of yourself. Toni

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I have had nothing but trouble with my TKR and revision , this past week I tried STEMWAVE PNS and don’t seem to be getting any good results. Has anyone chosen this path and any word on time frame VERY DISCOURAGED

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@sprinrosa64 I see you are interested in hearing from others who may have experience with a STEMWARE PNS. You will notice that I have moved your post into the existing PNS discussion, where I know you've already posted previously, to share your update and to better allow for others with experience to connect with you on this topic.

While we wait for others with experience to join, can I ask what your doctor shared with you about the timeline for results might look like?

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Thanks, the doctor and stemwave company both figure that a week to 10 days should show if it will work for me. Its been 5 days and I see no difference in pain level

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I look forward to hearing from others who have personal experiences with PNSs and how long it has taken to notice a reduction in pain.

@sprinrosa64 if you plan to see through the full ten days, will you please come back and share an update?

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Amanda I do plan on seeing it through even tho 6 days has shown no good results, after i see doctor by weeks end i will give up date 🙏it’s good update

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