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Peripheral Neuropathy vs Nephropathy

Posted by cbreiner @cbreiner, Aug 14, 2019

Has anybody heard of having nephropathy before diagnosis of diabetes? Where can I find documentation of this? Thank you

Interested in more discussions like this? Go to the Neuropathy Support Group.

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Jim, Volunteer Mentor | @jimhd | Aug 17, 2019
In reply to @tigreyes2004 "What were the side effects?. I have heard it does have bad side effects but I..." + (show)
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What were the side effects?. I have heard it does have bad side effects but I don't know what. My dr. mentioned Elavel but I have heard that was a bad one too. I don't know what to do for pain. I have a Medical Marajuana card & that seems to help me the most but it is too expensive but it does take the edge off.

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@tigreyes2004

I don't remember what every med I tried, but Lyrica is one that had dramatic side effects. I was incoherent, had some stroke symptoms, tachycardia, memory loss - enough to alarm the ER doctor so they admitted me. The last med I tried was desipramine, and I had to urinate up to 24 times a day - not an acceptable side effect. I started taking imipramine last Sunday, and so far no bad side effects, and it seems to be working on my foot pain. Cross my fingers.

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tigreyes2004 | @tigreyes2004 | Aug 17, 2019

Keep me posted on how you do on that imipramine please. I notice since I'm on the Cymbalta that I urinate like your doing. I wonder if that is a side effect. My kidney dr. told me I had to have my electrolytes checked being on this med. I hope that pill works for you.

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deanna21239 | @deanna21239 | Aug 18, 2019
In reply to @colleenyoung "@cbreiner, there are 2 medical terms that often get confused because they sound almost the same..." + (show)
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@cbreiner, there are 2 medical terms that often get confused because they sound almost the same and look similar: neuropathy and nephropathy.

NEUROpathy is a result of damage to the nerves (neuro) outside of the brain and spinal cord (peripheral nerves)
NEPHRopathy means kidney disease or damage (nephro).

To help me connect you to other members like you, can you tell me if you have neuropathy or nephropathy?

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I have Stage 3 Kidney disease and shattered my ankle in 2011. I was told a few years ago that I have Peripheral Nephropathy, so cannot take anything for pain but Tramadol, doesn't help the pain much, and wondered what else there is. I heard from my Kidney Doctor that Medical Marajuana is ok because it is natural, but have not tried that yet. Also have Diabetes now.

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sandyhill | @sandyhill | Aug 18, 2019

I was just in the Henry Ford Hospital with pneumonia and someone sent a neurologist to see me. I was diagnosed in October 2015 with guillian barre. He said something to me that stuck in my head. It was something to the effect of I will most likely get polyneuropthy since I had guillian barre. Can anyone give me more info to help me understand??? My local Doctors just really do not have a clue.

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John, Volunteer Mentor | @johnbishop | Aug 18, 2019

Hi @sandyhill, Welcome to Connect. I found some information that may provide some help in understanding the condition.

University of Chicago - Guillain-Barré Syndrome / Acute Inflammatory Demyelinating Polyneuropathy (AIDP)
-- http://peripheralneuropathycenter.uchicago.edu/learnaboutpn/typesofpn/inflammatory/guillainbarre.shtml

There is another discussion that you may want to read through and post any questions you might have:
> Groups > Neuropathy > Anyone been diagnosed with CIDP? It's very rare
-- https://connect.mayoclinic.org/discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare/

Are you able to share a little more about your symptoms? I'm sure other members with similar symptoms may be able to share what helps them.

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