Looking for young people with Graves Disease

Posted by brittntip @brittntip, Jul 4, 2020

Looking for people in their early 30s with Graves Disease (Hyperthyroidism)

Interested in more discussions like this? Go to the Autoimmune Diseases group.

Hi @brittntip, welcome to Mayo Clinic Connect. I've also added your discussion to the Endocrine System group: https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

Fellow members, @amtxo1989 @mcmurf2 @user_ch031a490 @quiteachiver75 @terri and @amihealthy have also discussed Graves disease, although I don't necessarily know their ages 🙂 See some of their posts in these discussions:

– Thyroid Graves Disease: Anyone else? https://connect.mayoclinic.org/discussion/thyroid-graves-disease/
– To people with Graves' disease: Do you have eye issues? https://connect.mayoclinic.org/discussion/people-with-graves-disease/

Brittntip, while we wait for other to join in, why don't you tell us a bit more about yourself. When were you diagnosed? What treatments, if any help you? What do you find most challenging living with Graves disease?

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I have had diabetes for quite a # of years and two moves ago (in St. Louis) had a doctor who was an endocrinologist and wanted my A1c to be below 6. I was in my 50s At that time. Now, in my late 70s , I have a nurse-practioner who told me recently that below 8 was good. My eyes are full of matter which I wash out every day. I wear glasses and have regular eye check-ups. I have had ovarian cancer and a hysterectomy. Also little spots of breast cancer. I have no information about Graves’ disease. I do think I am getting arthritis but I am visiting a physical therapist next week, and I do admit that I like sedentary activities rather than walking,etc. I started the sitting trend after cancer surgery because I was afraid of falling. Just speaking up now because I feel tired all the time! Any comments welcome. PS Justgot put on 25 mcg of Synthropol before breakfast and it seems to make me more lethargic.

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not early 30s,, but I do have Graves disease,, I"m 56. Have had it for (2) years but not diagnosed officially till a year ago.

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So sorry to hear your diagnosis. My 35 year-old niece was just diagnosed with it. I don't know a lot about her treatment at this point. I do know she could use support. She's a wonderful person with a great husband, a job she loves and an adorable 2 year old son. This diagnosis is emotionally tough on her and all who love her. How are you feeling? Got any ideas on how I can connect the two of you?

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@malter1011

So sorry to hear your diagnosis. My 35 year-old niece was just diagnosed with it. I don't know a lot about her treatment at this point. I do know she could use support. She's a wonderful person with a great husband, a job she loves and an adorable 2 year old son. This diagnosis is emotionally tough on her and all who love her. How are you feeling? Got any ideas on how I can connect the two of you?

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Hi @malter1011. I might suggest that you invite your niece to join Mayo Clinic Connect. Let me know if I can help.

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@susu2

I have had diabetes for quite a # of years and two moves ago (in St. Louis) had a doctor who was an endocrinologist and wanted my A1c to be below 6. I was in my 50s At that time. Now, in my late 70s , I have a nurse-practioner who told me recently that below 8 was good. My eyes are full of matter which I wash out every day. I wear glasses and have regular eye check-ups. I have had ovarian cancer and a hysterectomy. Also little spots of breast cancer. I have no information about Graves’ disease. I do think I am getting arthritis but I am visiting a physical therapist next week, and I do admit that I like sedentary activities rather than walking,etc. I started the sitting trend after cancer surgery because I was afraid of falling. Just speaking up now because I feel tired all the time! Any comments welcome. PS Justgot put on 25 mcg of Synthropol before breakfast and it seems to make me more lethargic.

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@susu2. Think you are in the wrong section here, but I have two thoughts. I understand a fear of falling, but what you really need is physical therapy. Tell them every problem you have, including the arthritis. The second suggestion: check your B-12 level. Even if you are within range, think I'd still take the smallest amount (mg) you can…

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Are there any support groups for Graves Disease? Online or face-to-face in Minnesota? I feel very alone in this. I don’t know anyone else with the disease. It’s been a rough ride.

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I am 36 and I have Graves Disease. I would really like to get into a support group or start one.

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@melrosejagger

I am 36 and I have Graves Disease. I would really like to get into a support group or start one.

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@melrosejagger this is a good place to connect with others living with Graves' Disease like @mcmurf2 @brittntip @evalvarez @sassylynn and others.

You may also wish to look into support groups run by the Graves' Disease & Thyroid Foundation: https://gdatf.org/community/support-groups/ and oneGRAVESvoice: https://www.onegravesvoice.com/

When were you diagnosed with Graves' disease? What is your biggest challenge at the moment?

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