Anyone had a liver biopsy for Primary Biliary Cholangitis diagnosis?

Posted by lbo615 @lbo615, Oct 27, 2022

Has anyone had a liver biopsy for PBC diagnosis? If so, what was your experience like? Did they put you out or did you feel pain?

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irisjolie | @irisjolie | Mar 15, 2023

In reply to @gema98 "I’m sorry the Urso did not work for you, what did your hepatologist recommend? My liver..." + (show)

The other medication for PBC is Ocaliva. That drug made me sick and the doctor had me stop taking it. My diet is very much like your diet. Add low fat and gluten free.
I have a treadmill and try to use it 6 days a week.

mayo99824 | @mayo99824 | Mar 15, 2023

I continue to be inspired by this group. I definitely think diet is a key factor in health. Exercise too.
Doctors have said that I will die or be institutionalized when I was born (down’s syndrome) at age 18 (nephritis) 22 (pericarditis), 37 (lupus) 62 (heart disease) and 67 (cirrhosis) but I am still alive and kicking. All except the last two were just totally wrong. When I do have a complaint they discount it and I am on my own.
I have been told that my blood pressure (135/75) is well controlled with medication and my blood pressure (135/75) was dangerous because I wasn’t on meds. It is hard, but I feel I need to ignore the negative and enjoy the positive.
I have biked around the world, run ultramarathons, born two kids in this old tired body and I refuse to fault it for showing wear.
Most of the things that are really health concerns for me are more likely due to bad medical advice. I think any liver and heart issues as likely due to daily tylenol, antibiotics and decongestants taken on doctor’s advice for years, than they are from being overweight as I age.
I also lost 30 pounds to help with liver enzymes and they did not get better and my doctor has not even noticed the weight loss.
Three out of four tests (enzyme ratios, MRI, INR) say I have fibrosis (still not good), not cirrhosis so, unlike my doctors, I am going to treat this like fibrosis and do all I can to get/stay healthy.