Parry Romberg Syndrome

Posted by jimmyjohnson74 @jimmyjohnson74, 3 days ago

Dent on my left cheek that developed within a weeks time and getting worse everyday. Could this be PRS? Would post a picture but not sure how to do that.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

John, Volunteer Mentor | @johnbishop | 2 days ago

Hello @jimmyjohnson74, Welcome to Connect. I see that you have already found another discussion where @jonfortier posted a picture with symptoms similar to yours. I hope the member returns and responds to your question but I'm not sure he is still following Connect. He was last active on Connect last January.

Here is some information on Parry-Romberg Syndrome from NIH, including the treatment and management of the condition - https://www.ncbi.nlm.nih.gov/books/NBK574506/.

Have you seen a doctor yet?

jimmyjohnson74 | @jimmyjohnson74 | 2 days ago

In reply to @johnbishop "Hello @jimmyjohnson74, Welcome to Connect. I see that you have already found another discussion where @jonfortier..." + (show)

@johnbishop Jan 6th

jonfortier | @jonfortier | 2 days ago

In reply to @johnbishop "Hello @jimmyjohnson74, Welcome to Connect. I see that you have already found another discussion where @jonfortier..." + (show)

@johnbishop, I answered him on the other thread. Unfortunately nobody has been able to figure it out. Luckily it hasn't progressed any.

jimmyjohnson74 | @jimmyjohnson74 | 2 days ago

In reply to @johnbishop "Hello @jimmyjohnson74, Welcome to Connect. I see that you have already found another discussion where @jonfortier..." + (show)

@johnbishop how do I upload a photo in my comments?

John, Volunteer Mentor | @johnbishop | 2 days ago

In reply to @jimmyjohnson74 "@johnbishop how do I upload a photo in my comments?" + (show)

@jimmyjohnson74 - Click the Add Photo/Files (optional) button under the Comment box at the left. Then click to locate and upload the photo. Photos have to be less than 5MB. See the screenshot I took below.

jimmyjohnson74 | @jimmyjohnson74 | 2 days ago

I do not have the option to add photo when commenting for some reason.

jimmyjohnson74 | @jimmyjohnson74 | 2 days ago

In reply to @johnbishop "@jimmyjohnson74 - Click the Add Photo/Files (optional) button under the Comment box at the left. Then..." + (show)

@johnbishop I do not have the option to add photos.I can only comment,like,helpful or hug.No way to upload.

John, Volunteer Mentor | @johnbishop | 2 days ago

In reply to @jimmyjohnson74 "@johnbishop I do not have the option to add photos.I can only comment,like,helpful or hug.No way..." + (show)

@jimmyjohnson74, If you don't see the button below the comment window where you type your reply, then it may be because you are a new member.

Sorry, I should have mentioned I think there is a short period of time you have to wait after you first join Connect before you are allowed to post links and I think it may also apply to uploading images and files. The waiting period is to prevent advertising and spamming on Connect.

@colleenyoung is this correct? New members also have a waiting period before they can upload images?

Colleen Young, Connect Director | @colleenyoung | 2 days ago

In reply to @johnbishop "@jimmyjohnson74, If you don't see the button below the comment window where you type your reply,..." + (show)

@johnbishop, that is correct. @jimmyjohnson74, you will be able to upload images in a few days.

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