Parkinson hallucinations

@jatonlouise I have been hearing music and at times announcers for some fourteen years and when I went to get hearing aids I mentioned it the doctor and he said “ I never heard of that “ but now I know my medicine doesn’t work on that problem

Are your hallucinations scary? I have been very fortunate that all mine have been more or less benign. One is that I hear a men's choir singing just outside my bedroom window. The only tbad thing about it is that they only sing one song, over, and over.I would love for them to learn a new song. I also sense people around me, just over my shoulder, but when I turn to face them they disappear The people aren't scary - sometimes it's like whaat I imgine the lunch room on the MGM studio in California looks like - a sailor, a cowboy, a ballerina, etc. I'm in the Advanced Stage and don;'t want to raise my l-dopa if I can help it. and my doctor and I agree that these little annoyances are a small price to pay for geting my meds. However, is yours are scary that's very different. I don't know if there's a way to deal with your hallucinations if they're scary but perhaps a psychoterapist could teach you some techniues ses for dealing with them. Some children have bad dreams and maybe there are techniques for dealing with such things that could be adapted to help you deal with them. Or you could send them over to Berlin and I could introduce them to my hallucinations, who could;-) show them how they could stop being scary. 😉

Is anyone taking a medication that has helped with hallucinations? Currently taking Nuplazid with limited results. Walking has gotten worse but cannot increase carbidopa/levodopa because it seems to worsen the hallucinations. Looking for some relief with either symptom.

My haĺlucinations pretty much track with my l-dopa dosage - the higher the dose, the more I hallucinate and the more elaborate they are. Fortunately, mine are mild and benign, and I can generally distinguish between them and reality. The only error in that was the time I mistook reality for an hallucination. I thought the man in the black silk pajamas sitting at a table at the foot of my bed in the hospital was a hallucination but it turned out he was real. He had Alzheimer's and operates on the level of a 2-year-old and he was helping himself to my chocolates. Sometimes I have aural hallucinations and I really wish the choir I hear would learn a different song than the one that 's the intro for CSI-Las Vegas. Sigh. Mabe a little Statler Brothers or the Oak Ridge Boys, or Willie, and Waylon or that dreamy Josh Turner would be cool... sigh.

@hopeful33250
72 year old male diagnosed 3 years ago but feel PD was present many years before diagnosis. Full hallucinations occurred when C/L was increased. Prior to that I experienced delusions after first starting C/L. Have been taking quetiapine for last several months and have recently included Nuplazid. Neither drug has helped rid me of the hallucinations as of yet. Has anyone had any success elimination hallucinations or is this something I will need to live with?

You definitely need to consult your doctor about adjusting your Carbidopa levodopa dosage. Higher dosages can cause hallucinations and even psychosis. If you still experience hallucinations without the Carbidopa levodopa, then your doctor could prescribe pimavanserin. It helps treat hallucinations in PD patients. Also, there are other PD medications besides Carbidopa levodopa. My hubby takes Ropinirole that helps with PD and restless legs. He is doing very well with it. Find what works for you.

@barryl I didn't have hallucinations until afer I started taking l-dopa. I don't know whether it was just a coincidence or if there's a causal relationship between l-dops and hallucinations. Some folks have scary hallucinationals. Fortunately, my hallucinations are a jolly experience. One category of hallucinations I call 'interior decorating." -- For example, I know perfectly well that all the fixtures in my bathroom are boringly white. However, sometimes I see designs similar to the glyphs of pre-Columbian cultures in such as Aztec and Mayan glyphs. My husband and I have been to some of the places and we are very much interested in these things so I think my brain is giving me a little treat, since we can't go there any more. I also know that none of our IKEA furniture (China closets and bookcases) are decorated to look lie brocade fabrics, but sometimes they do. I also sense the resence of imaginary people. Once these folks were dressed as those you might see on an MGM movie lot in the cafeteria - cowboys, knights, cowgirls, gymnasts. etc. I feel their presence in my peripheral vision, but with I turn to look at them directly, they disappear. immediately.I can generally recognize the difference between my hallucination and reality. However, once when I was in the hospital , (after my 3rd go-round of "Stump the Doctors," and finallly got my diagnosis of PD), I had taken a nap and I w oke up to see a man in black silk kpajamas sitting at the table at the foot of my bed. I first thought he was just another hallucination, but when I looked directly at him, he didn't disappear. I buzzed the nurse and when she got to my room, she recognzed the man. I was on the neurology ward and there were also folks with Alheimer'e and other diseases and he was functioning basically as a two-year-old child, and didn't recognze the difference between what belonged to him and what belonged to others. Unfortunately he took all my chocolates, which could, under other situations, would have had dire consequences for him; I do not take lightly to folks staking my chocolates!! I'm also fortunate in that I can generally tell when something is a hallucination and when it's not. I know that I hallucinations tend to occur more frequently if my l-dopa doses are very high. These that I had in thehhospital occurred when they were tryin to find the fight dosage for my l-dopa pump. Oral meds don't ave a one-to-one correlation with pump meds so there is some experimentation required to figiure out what the pump dose should be,and someo of my doses were realy high while in the hospital evalluating me for that. . I regard my hallucinations as my own private TV channel, but If your hallucinations are bothering you, I encourage to talk with your doctor about what you can do to make them less worrisome.

Hello @monmk and welcome to the PD support group on Mayo Clinic Connect. I'm sure that these hallucinations must be unsettling for you. I see that @barryl and @estutweh have already shared their experiences with you.

There is some great information. Here is a link to an article about PD hallucinations on the Davis Phinney website: https://davisphinneyfoundation.org/blog/how-to-bring-light-to-the-darker-side-of-parkinsons-a-primer-on-hallucinations-and-delusions-and-how-to-manage-them/

Here is a quote from this article: "Parkinson’s disease psychosis is a non-motor symptom of Parkinson’s that causes people to experience hallucinations and/or delusions. Approximately 50% of all people living with Parkinson’s will experience some form of hallucinations or delusions, and the longer one lives with Parkinson’s, the greater the likelihood they’ll experience them."

This is described as a non-motor symptom of PD and is a result of having PD for an extended period of time. As this is your first post, please share, as you are comfortable doing so, a little about your history with PD. For example, how long ago were you diagnosed? Are hallucinations a new symptom for you?

I "see" things that aren't there. I "feel" things that aren't there. I've experienced these things well before being diagnosed with PD. I've, had Parkinson's symptoms for about 15 or 20 years.
I was blaming all of these symptoms on Ischemic Heart Disease and Hypothyroidism all these years.

yes, my son has it. its very upsetting to him.
anyone has any suggestion.