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Starting Peritoneal Dialysis: What do I need to know?

Posted by miker8888 @miker8888, Nov 10, 2022

Have just has surgery to install a catheter for Parenteral Dialysis. Will have to wait 3 weeks for healing. I have a really good group of vascular and nephrology doctors and support but am still trying to find out how others manage the daily routines. I still have some kidney function (GFR 13-14) so am hopeful that I can maintain them for awhile. At my age (83), a transplant is off the table. Any input as to problems, diet and certainly, successes would be appreciated.

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Mentor
Ginger, Volunteer Mentor | @gingerw | 6 days ago
In reply to @trishak "We have discussed the possibility of retransplant with our kidney transplant team in Washington. However, it..." + (show)
@trishak

We have discussed the possibility of retransplant with our kidney transplant team in Washington. However, it might be several months from now before that could happen and my husband would have to qualify all over again as a suitable candidate. It's my understanding he would not have to start over on the waitlist. We've considered listing with Mayo clinic, but don't know what's involved or what that would mean for waitlist status.
In a perfect world, we could go straight to retransplant and pass on the peritoneal and home homodialysis.
I appreciate the feedback and the links.

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@trishak Being you are in Washington, have you checked in to OHSU or Legacy Good Samaritan, both in Portland, Oregon? My husband goes to Legacy for his transplant care since we moved up here in 2019. He was transplanted in 2016.

I agree being able to multi-list at different transplant centers may be helpful. As the old saying goes, if you don't ask, the answer will be "no". Mayo Clinic has a different procurement area, and if you can find a qualifying live donor, there may be less of a wait time.
Ginger

REPLY
1 reply
trishak | @trishak | 5 days ago
In reply to @gingerw "@trishak Being you are in Washington, have you checked in to OHSU or Legacy Good Samaritan,..." + (show)
@gingerw

@trishak Being you are in Washington, have you checked in to OHSU or Legacy Good Samaritan, both in Portland, Oregon? My husband goes to Legacy for his transplant care since we moved up here in 2019. He was transplanted in 2016.

I agree being able to multi-list at different transplant centers may be helpful. As the old saying goes, if you don't ask, the answer will be "no". Mayo Clinic has a different procurement area, and if you can find a qualifying live donor, there may be less of a wait time.
Ginger

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Hello Ginger, my husband and I are from Alaska; however we are in region 6 procurement area. At this point we haven't checked other transplant centers. Having to test and retest for other centers is a bit of an obstacle

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Mentor
Ginger, Volunteer Mentor | @gingerw | 4 days ago
In reply to @trishak "Hello Ginger, my husband and I are from Alaska; however we are in region 6 procurement..." + (show)
@trishak

Hello Ginger, my husband and I are from Alaska; however we are in region 6 procurement area. At this point we haven't checked other transplant centers. Having to test and retest for other centers is a bit of an obstacle

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@trishak Ah, now I see where your username comes from, with "ak" on the end!

You can always make the inquiry to a transplant center, to see if they will accept testing from what you have already done. It's worth asking, if they know your situation.
Ginger

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