Paraneoplastic Syndrome

Posted by alexkline @alexkline, 5 days ago

Hi. My mother was diagnosed with Paraneoplastic Syndrome at the beginning of last year here in the Bay Area. We’ve been treating with the UCSF medical system. Looking for any information that might be helpful as we know the Mayo Clinic seems to be on the forefront of treatment for this condition. She has done some IVIG, PLEX and Retuximab treatments although not always as regular as we think your neurologist should have her being treated. Wondering if there’s anything out there we are missing. Thanks so much.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Becky, Volunteer Mentor | @becsbuddy | 5 days ago

@alexkline Welcome to Mayo Clinic Connect! MCC has thousands of members and I’m sure one of them can answer your questions. If you think that your mother would like to be seen at Mayo Clinic, you can apply for appointment. These appointments are very hard to come-by as so many people are trying. I’m sure some members are ready to converse with you, so I’ll say goodbye.