Paralysis
Has anyone had to stop themselves from going into lapses of paralysis? It happens with my whole body.
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Has anyone had to stop themselves from going into lapses of paralysis? It happens with my whole body.
Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.
gseaborn (@gseaborn) - Sounds scary... have you had an MRI done yet? that's how they found my compressed spinal cord, which caused numbness, muscle atrophy, and was leading to paralysis.
You might have a completely different thing going on,though, since you have intermittent attacks of paralysis. what does your doc tell you? Has he or she referred you to a Neurologist yet?
hoping and praying for total healing and restoration for you.
@uisge I have a neurology consult in January. I had als as a child so I know somewhat about what is going on, but a neurologist can help me more with possible treatment since I had some in the past. Haven't seen a doctor about my als since I was a child. Now symptoms are occurring again, its kind of a pain to go through again, but I guess I'll see what they say then.
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2 Reactionsoh, then you already know the drill.... I'm sorry you have to go through that. 🙁
Have you ever looked into the Periodic Paralysis group of disorders? They're fairly rare, and doctors often don't think of them when diagnosing. This is a good starting point: https://hkpp.org.
How long do the episodes last? Looking back from episodes, can you think of any common factors in the days before the episodes (food, medications, exercise, stress, shock). If this does happen to be your problem, these are the things you'd need to document to get a diagnosis.
Different disorders in the group have different triggers and different paralysis durations e.g. Hypokalemic Periodic Paralysis (which I have) can be triggered by eating anything with a high sugar content, by shocks that set off an adrenaline rush, and by a wide range of medications eg local anaesthetics, asthma pumps, steroids.
The good news is, with these disorders, they usually improve hugely with good management