Pancreatitis: Questions about further investigations

Posted by fogel1960 @fogel1960, Jul 25, 2021

I have been hospitalized. 4 x in last 6 months with acute pancreatitis. My liver enzymes go high, then go down, except the Alkaline Phosphate, that remains high.
I have sever stomach oain that radiates to upper left back. I’m nauseous. I am so bloated it hurts.
I’m not jaundiced
I recently had an MRCP, it said:my CBD is at 13mm, probable right adrenal myelolipoma,
Foci within the pancreas likely represent IPMNs.,
distal CBD stricture or occult ampullary mass
There is mild intrahepatic biliary ductal dilation.
There is a cluster of T2 hyperintense foci within the pancreatic body
. There is a T2 hyperintense focus within the tail the pancreas measuring approximately 3 mm.

I know I wrote a lot down but I’m praying someone in this group can give me direction. They cannot get me in for an EUS until November. Should I try to get into Mayo?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

jojo19 | @jojo19 | Jan 27, 2022

In reply to @hopeful33250 "To @fogel1960, @harper7745 @stormchild74 @astaingegerdm @redhead1116 @mariou and other members who are dealing with pancreatitis. Here..." + (show)

If seems that several people missed this. Was it recorded and can it be sent to us?

Teresa, Volunteer Mentor | @hopeful33250 | Jan 27, 2022

In reply to @jojo19 "If seems that several people missed this. Was it recorded and can it be sent to..." + (show)

Anyone who would like to get a copy of this would need to contact the National Pancreas Foundation directly as they were the ones who presented this. Here is the email to contact them: info@pancreasfoundation.org.

The presentation might have been recorded for future viewing but I do not know for sure. You will need to contact them directly.

Here is the Foundation's website where you can get more information about disorders of the pancreas, https://pancreasfoundation.org/patient-information/

Let me know what you find out.

jojo19 | @jojo19 | Jan 28, 2022

In reply to @hopeful33250 "Anyone who would like to get a copy of this would need to contact the National..." + (show)

For anyone that has missed webinars from the NPF. You can find all past webinars on our Youtube channel: https://www.youtube.com/user/NationalPancreasFdn