← Return to Pancreatic NF-NET stable since 2005 - surgery or not?

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@jadedprincess

Hello, my tumor was discovered by accident while they were checking for kidney stones. My symptom was back pain but I was also having alot of night sweats. No one was really sure if it was a PNET or a exocrine tumor. It was 3cm in size and in the tail. They tried to bx it with an EUS. That doctor said he could not access it with a needle which meant it was most likely a fast growing cancer. The next day I saw a pancreas specialist and she removed the tail of the pancreas containing the tumor and the spleen. The biopsy revealed it was a PNET. I had a long recovery but the peace of mind is 100 percent worth it. So far my blood sugar has remained stable. I do have intermittent issues with digestion, but I would not change my decision for anything. It has been five years. I have yearly blood testing and MRI's with an oncologist.

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Replies to "Hello, my tumor was discovered by accident while they were checking for kidney stones. My symptom..."

Hello @jadedprincess

I appreciate you sharing your experience with PNET. I'm glad to hear that you had such good surgical results and that you have peace of mind now.

You said that you have intermittent issues with digestion. Are there any particular foods that cause these issues?