Pancreatic enzyme replacement

Posted by marvinjsturing @marvinjsturing, Jul 13, 2018

I am a 4 year survivor of pancreatic cancer. I have been on creon since my Whipple. It is very expensive. I talked to someone who was using Pure Encapsulation instead of creon. The formula doesn’t match my creon, but it is about 1/4 the cost of the co-play on creon. What are other survivors doing about pancreatic enzymes replacement?

Liked by beachdog

@beachdog

My wife has been using RSO ever since she started chemo. Without it, she probably would have never eaten again. Using RSO is the only way she got off of Oxy. How does your husband take the RSO? My wife started by putting it onto a cookie or cracker but the smell and flavor were so off-putting that I have been making capsules. Unfortunately taking in a capsule makes the onset of the effect very delayed and hard to predict.

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I do use capsules but there is a delay. Rolling it in bread works too. It is like tar if you get it on your teeth. The dossage for cancer is a gram per day. We could only do a couple rice grains or he gets to feeling high. Nothing touched his pain till this, cbd makes it work better. The company I am working with will make a high potency version for cancer.

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I have chronic pancreatitis from alcohol abuse. I started using pure encapsulations 4 years ago, and able to eat almost everything. One capsule before any meal or snack and one capsule after. In my last episode I lost 40 pounds, with this I have gained 15 pounds in three weeks. The amount of lipase, protease and amylase are much higher than Creon and much less expensive. I use pancreatic enzymes formula. Hope it help you.

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@beachdog

@colleenyoung My wife has a combination of forcing herself to eat because she has to and some minimal appetite because she's using medical marijuana. She also takes megace and marinol (laboratory thc) which seems to provide no benefit at all. She's eating 6 meals and snacks per day now with calories estimated to be 1000-1500 but the first month she probably didn't even get 500-1000 per day. I have no question that she has severe malnutrition. A week of eating well with intermittent diarrhea she might gain a pound or two but a day of diarrhea can set her back 2-3.

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Try pancreatic enzymes from pure encapsulations. You can get it from Amazon. One capsule before and after each meal and snack. You will notice the difference. The enzymes works.

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