I see Dr. David Kelsen, he is really great, very nice, attentive, down to earth and expert. He is interested in PRCA mutation, which I have. Dr. O'Reilly is also in that group, I haven't seen her but hear good things. Make sure that you see someone in the pancreatic group. The senior faculty are all in Manhattan and I wanted to see a senior faculty. For a really expert opinion, I would go to the lead or senior faculty. If someone is associate, assistant, etc faculty then they are not senior faculty. I read through all the "About me" statements of the doctors which describes their practice. In the process I found Dr. Kelsen. You will get a good idea if a doctor seems like a good fit for you.
Hi Garden Lady, I am going to go to MSK for second opinion. They gave me appointment with a dr who doesn't specialize in Pancreatic cancer, and I asked them to switch to another dr. I have a few choices, and want to get with a dr who specializes in pancreatic cancer. Do you have a dr there you could recommend? I want to be in Dr. O"Reilly's group. She is the head of the pancreatic group. I see some drs seem to have more research related to pan can, and are more involved with clinical trials in that area. One has a specialty in palliative care which I do not need at this point. Any recommendations would be appreciated. I know they have drs in West Harrison and NYC, and I am in CT, so can go to either location. Thank you garden lady.
MSKCC is a great place. My oncologist is really great and I appreciate being treated with compassion and respect. as well as excellence. You will be in good hands at MSKCC.
Hi Garden Lady, I am going to go to MSK for second opinion. They gave me appointment with a dr who doesn't specialize in Pancreatic cancer, and I asked them to switch to another dr. I have a few choices, and want to get with a dr who specializes in pancreatic cancer. Do you have a dr there you could recommend? I want to be in Dr. O"Reilly's group. She is the head of the pancreatic group. I see some drs seem to have more research related to pan can, and are more involved with clinical trials in that area. One has a specialty in palliative care which I do not need at this point. Any recommendations would be appreciated. I know they have drs in West Harrison and NYC, and I am in CT, so can go to either location. Thank you garden lady.
I see Dr. David Kelse. I was interested in someone who had an interest in BRCA mutation. He is a great doctor, very nice, down to earth, and really listened to me. I also see Dr. William Jarnigan, surgery, very down to earth see listened to my questions and asked me about my symptoms, mainly from the pancreatic insufficiency and got me going on higher doses which improved my quality of life.
MSKCC is a great place. My oncologist is really great and I appreciate being treated with compassion and respect. as well as excellence. You will be in good hands at MSKCC.
My husband is Stage 4 metastasized to liver and we had been aware of this but were told he would not be a candidate- we are at MSK
Maybe that will change.
As I read more about it, the MRNA vaccine in Germany has been used in a very small trial with good results. It was used with people that were NED to see if it could prevent reoccurrence. After 18(?) months some success was seen.
I am stage IV but currently NED and searching for what to do next to keep this bad boy away! As I gather information from consults I hope to schedule, I will post.
Right now I am carefully watching my diet, staying active, smiling as much as possible, and being grateful .
MSKCC is a great place. My oncologist is really great and I appreciate being treated with compassion and respect. as well as excellence. You will be in good hands at MSKCC.
My husband is Stage 4 metastasized to liver and we had been aware of this but were told he would not be a candidate- we are at MSK
Maybe that will change.
This vaccine sounds like initially for post Whipple operations - but, hopefully more progress will occur for PC - and, for all the other myriad of cancers.
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I see Dr. David Kelsen, he is really great, very nice, attentive, down to earth and expert. He is interested in PRCA mutation, which I have. Dr. O'Reilly is also in that group, I haven't seen her but hear good things. Make sure that you see someone in the pancreatic group. The senior faculty are all in Manhattan and I wanted to see a senior faculty. For a really expert opinion, I would go to the lead or senior faculty. If someone is associate, assistant, etc faculty then they are not senior faculty. I read through all the "About me" statements of the doctors which describes their practice. In the process I found Dr. Kelsen. You will get a good idea if a doctor seems like a good fit for you.
Garden lady--I now upload my email again, and see you already gave your dr name. Thank you.
Hi Garden Lady, I am going to go to MSK for second opinion. They gave me appointment with a dr who doesn't specialize in Pancreatic cancer, and I asked them to switch to another dr. I have a few choices, and want to get with a dr who specializes in pancreatic cancer. Do you have a dr there you could recommend? I want to be in Dr. O"Reilly's group. She is the head of the pancreatic group. I see some drs seem to have more research related to pan can, and are more involved with clinical trials in that area. One has a specialty in palliative care which I do not need at this point. Any recommendations would be appreciated. I know they have drs in West Harrison and NYC, and I am in CT, so can go to either location. Thank you garden lady.
I see Dr. David Kelse. I was interested in someone who had an interest in BRCA mutation. He is a great doctor, very nice, down to earth, and really listened to me. I also see Dr. William Jarnigan, surgery, very down to earth see listened to my questions and asked me about my symptoms, mainly from the pancreatic insufficiency and got me going on higher doses which improved my quality of life.
Would you be able to share your Oncologist? I am trying to get into a center of excellence for an opinion on my best next course of action.
As I read more about it, the MRNA vaccine in Germany has been used in a very small trial with good results. It was used with people that were NED to see if it could prevent reoccurrence. After 18(?) months some success was seen.
I am stage IV but currently NED and searching for what to do next to keep this bad boy away! As I gather information from consults I hope to schedule, I will post.
Right now I am carefully watching my diet, staying active, smiling as much as possible, and being grateful .
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4 ReactionsMSKCC is a great place. My oncologist is really great and I appreciate being treated with compassion and respect. as well as excellence. You will be in good hands at MSKCC.
My husband is Stage 4 metastasized to liver and we had been aware of this but were told he would not be a candidate- we are at MSK
Maybe that will change.
Everyone is researching everything (ex: https://www.mskcc.org/clinical-updates/custom-mrna-vaccines-pancreatic) (https://www.nature.com/articles/s41586-023-06063-y) (https://www.genengnews.com/topics/drug-discovery/therapeutics/vaccines/personalized-mrna-vaccines-offer-hope-for-treating-pancreatic-cancer/) (https://www.medpagetoday.com/hematologyoncology/othercancers/104465) (https://medicalxpress.com/news/2023-05-personalized-mrna-vaccine-aggressive-pancreatic.html)- frankly, prior to this MRNA based vaccine, there has been limited progress in treatment - a few make it through the keyhole, but the circumstances are always a bit different.
This vaccine sounds like initially for post Whipple operations - but, hopefully more progress will occur for PC - and, for all the other myriad of cancers.
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3 ReactionsIs Mayo researching these vaccines too?
If this could be done with a problematic IPMN, it could be a significant advancement for proactive treatment, too.