Pancreatic cancer stage 4: staying hopeful with your support

@pvctom2021 The mental and emotional side effects can be as difficult to manage as the physical. Take things one step at a time. Let us know how tomorrow goes ok?

@tomrennie

I certainly will let you know how things go Wednesday, and Thursday.. down 4,pounds from the last weigh 3,days ago…must ask the oncologist about this tomorrow….God Bless you for replying . pvctom🙏

@tomrennie
Hello Ron, will the labs were ok to continue the chemo tomorrow… and the liver enzymes were almost at normal. Bilirubin was 1.1 down from 12…my sore throat turned out to br thrust, which I was given an antibiotic mouth rinse to take and swallow each day for R
4 times… so back there tomorrow @11:00… let you know more tomorrow pvctom🙏

@pvctom2021 Day one done, and you are healthy enough to continue chemo. Good news. Please let us know how today goes? I have my fingers crossed for you.

@tomrennie
Hello Tom
Well it went ok.. they had trouble finding a vein. They finally did, but it left me with a bruiser. Also, the one particular chemo I think it’s called Abraxone, was not available. they just gave me the gems. AreThey did not get their delivery because of inclement weather other than that, my labs were OK and I hope to catch up with the abraxane next week Wednesday, I believe it is. I don’t feel too good right now. I guess it’s the beginning round two I hope you have a wonderful evening and that you’re not freezing the way we are here in the east God bless you,, pvctom

@pvctom2021
Good luck with your treatment. I'm beginning year 4 out here in Southern California. I hope you have a good provider; thats the key. Make sure you have your iced booties and mittens during treatment. I'm off chemo now (gem-abraxane) as I was on 3 weeks in a row and it gave me severe inflammation of bladder and I also got internal neuropathy which I didn't even know was possible. I'm told it's a rare side effect. Taking gabapentin now for it; hope it works and I'll find out next week if I can continue a maintenance level of chemo. Chemo is my only hope (where is RMC 6236 when you need it?) as the cancer has spread to the abdominal peritoneum and gem/abraxane is the only solution for that, as far as I know. Still trying to enjoy life; make sure you have a good support group and prayer.

@mnewland99
Thank you so much .. I intend to make this clinic thread my main course of support group.. my oncologist is getting a call shortly or the pod team extension. I need to have a heart to heart about the NO abraxane and just the benzene… I felt not to well last night..and I expressed several concerns over the port… done outside…and last my cancer androgen flag went from 4758 to 8754 with just dose one last week of the gemzare/abraxane…I feel she is an excellent oncologist but hard to reach as well as her NP…..hopefully I can get through to them today….may God Bless you
pvctom🙏

@pvctom2021
Gem by itself is not very helpful. Not unusual for your number to go up after first treatment and then go down by 2nd treatment. Are you getting the pre meds (anti nausea, benedryl or prednisone)? It's normal to feel sick the first 3 or 4 days after your treatment. Drink lots of water and try to exercise.

@mnewland99
thanks for the information.. don’t know what’s going on.. they could or hit a vein clear… they basically are saying that if I don’t get the port through whatcOthonk is a very invasive procedure, that they can’t be sure of future treatments… so it’s Monday I go, and I am not at all pleased the way my oncologist is never around when I need to speak to her.. just frustrating pvctom🙏

@pvctom2021
Hello, perhaps I missed it but where are you being treated? This sounds somewhat irregular.
Are you saying your power port has not yet been installed?