Connect
Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
Like
Helpful
HugInterested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect
@rharlow3024 Hi and welcome to Mayo Connect. The weight loss sounds challenging. Were you, or are you, on any digestive enzymes? What have you tried to maintain a desirable weight?
@valerina30 Running to the bathroom is never fun. When are you taking your creon? How much are you taking?
@suelannon I agree with you. We are very passionate about our beliefs and our defense of them. We also love our community and the people in it. I learned, "We are better than me!" growing up in Philly. On Connect, I just hope to be a small part of someone's we.
-
Like -
Helpful -
Hug
1 Reaction@tomrennie watching Phillies now to- hope score holds up!
i mainly walk but its been super hot and will be again this week so focusing on indoor activities. Our basil and figs are both coming in so I am dehydrating figs, making preserves and freezing pesto. chasing the grandkids but trying to keep a healthy pace there. once it cools i will walk more and attempt to ride my bike some. today was another good day. after the game to bed to rest up for my second cycle.
hope your day has been a good one!
-
Like -
Helpful -
Hug
1 Reaction@tomrennie hi I was taking 1 25000 then they said try taking 2. Still sometimes it works a sometimes not. An I’m losing weight that I can’t afford to lose
-
Like -
Helpful -
Hug
1 Reaction@rharlow3024 losing weight can be good/bad-but losing muscle is the biggest problem . Have you tried walking more and possibly it using hand weights?
Will you be in Milwaukee for the Power of Us in August?
You are very lucky to have worked with Dr Evans group . I suspect their nurse navigator would have tips for you to put on some muscle weight!
-
Like -
Helpful -
Hug
1 Reaction@valerina30 When do you take them?
@tomrennie I take a bite of food then take one then another bite an take a 2and one.
-
Like -
Helpful -
Hug
1 Reaction@jopier The score did hold up for a Phils win! I walk a lot too, but I can relate to it being hot. It is 112 here today. I try to walk by 7am to avoiding melting. Chasing grandkids can be fun especially when you catch them. It sounds like you have some very tasty hobbies that I wish that I could indulge with you. My oncologist told me to never stop moving, if I can. I heed that advice to the best of my ability. Any day above the dirt is a good day for me. Thanks for asking. When is your second cycle?
@valerina30 Here is a discussion on some tips on how to best take creon. Other members have used the tool on pertcalculator.org. Take a look at them, and let me know if you find anything helpful.
https://connect.mayoclinic.org/discussion/creon-am-i-taking-too-much-or-too-little/
-
Like -
Helpful -
Hug
1 Reaction