1. < Pancreatic Cancer
Moderator

Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

jessieleigh | @jessieleigh | Nov 29, 2022
In reply to @mayoconnectuser1 "jessieleigh, There could be a build up of fluids in the abdominal area due to ascites..." + (show)
@mayoconnectuser1

jessieleigh,

There could be a build up of fluids in the abdominal area due to ascites ... has this been assessed?

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Thank you for responding. I asked the RN if the bloating could be ascites and she said that he has gas, not ascites, and that this is a common side effect of his chemo. She said for him to move around and eat more frequently. Have you heard or read anything supporting this? He sees the oncologist this week, I plan to ask her then.

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2 replies
mayoconnectuser1 | @mayoconnectuser1 | Nov 28, 2022
In reply to @jessieleigh "My father was recently diagnosed with stage IV pancreatic cancer with metastasis to liver and peritoneum...." + (show)
@jessieleigh

My father was recently diagnosed with stage IV pancreatic cancer with metastasis to liver and peritoneum. I am heartbroken. He just finished his first dose of folfirinox and is very weak and eating very little. He sleeps alot and says he feels "uncomfortable" but doesn't describe it as pain, he says he feels "bloated" in abdomen.
The radiologist that did his biopsy mentioned radioembolization for the liver tumors. I made a post about this already but no one has commented yet. Have you heard of this being used for liver metastasis? I'm wondering if it will make him more comfortable. Thanks for reading,
JessieLeigh

Jump to this post

jessieleigh,

There could be a build up of fluids in the abdominal area due to ascites ... has this been assessed?

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1 reply
jessieleigh | @jessieleigh | Nov 27, 2022

My father was recently diagnosed with stage IV pancreatic cancer with metastasis to liver and peritoneum. I am heartbroken. He just finished his first dose of folfirinox and is very weak and eating very little. He sleeps alot and says he feels "uncomfortable" but doesn't describe it as pain, he says he feels "bloated" in abdomen.
The radiologist that did his biopsy mentioned radioembolization for the liver tumors. I made a post about this already but no one has commented yet. Have you heard of this being used for liver metastasis? I'm wondering if it will make him more comfortable. Thanks for reading,
JessieLeigh

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1 reply
susanpmadigan | @susanpmadigan | Nov 24, 2022

God bless you ! Enjoy the day today with your family 😊

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bobbiebailey | @bobbiebailey | Nov 23, 2022
In reply to @stephenkogler "Bobbie, That is amazing that you are a triathlete. Use that strength and mental fitness you..." + (show)
@stephenkogler

Bobbie,
That is amazing that you are a triathlete. Use that strength and mental fitness you have from your training. Stay strong.

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thank you

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stephenkogler | @stephenkogler | Nov 23, 2022
In reply to @bobbiebailey "I was diagnosed with pancreatic cancer and had the whipple surgery done and I am awaiting..." + (show)
@bobbiebailey

I was diagnosed with pancreatic cancer and had the whipple surgery done and I am awaiting the pathologist of which stage I am in...In the meantime my fatigue is so overwhelming that I cannot function is this normal..I am 77 years old and for the most of my life I have been active in triathlons and iron man so why is it so hard for me to recover...

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Bobbie,
That is amazing that you are a triathlete. Use that strength and mental fitness you have from your training. Stay strong.

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1 reply
stephenkogler | @stephenkogler | Nov 23, 2022

Hello Everyone,
My first day here. As you know, it’s a crazy few weeks after being diagnosed (10/27/2022). First infusion yesterday and working on an at-home pump for a few days. Staying positive and trying to stay in the moment. Love to all. Below is a picture of me and my mother. She just turned 93 this week.

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1 reply
sloped483 | @sloped483 | Nov 23, 2022
In reply to @bobbiebailey "I was diagnosed with pancreatic cancer and had the whipple surgery done and I am awaiting..." + (show)
@bobbiebailey

I was diagnosed with pancreatic cancer and had the whipple surgery done and I am awaiting the pathologist of which stage I am in...In the meantime my fatigue is so overwhelming that I cannot function is this normal..I am 77 years old and for the most of my life I have been active in triathlons and iron man so why is it so hard for me to recover...

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Be kind to yourself as you just underwent major surgery.

Healing takes a bit of time so do rest when you feel you need to whenever that may be.

Here's wishing you an uneventful speedy recovery.

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sprinter345 | @sprinter345 | Nov 23, 2022

You are in a great place for care and I wish you the best. You have an extremely good attitude and realize how lucky you are to be able to have a chance. God Bless

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bobbiebailey | @bobbiebailey | Nov 22, 2022
In reply to @rhillmer "My name is Rachel, and I was diagnosed with pancreatic ductal adenocarcinoma on April 25 of..." + (show)
@rhillmer

My name is Rachel, and I was diagnosed with pancreatic ductal adenocarcinoma on April 25 of this year after a hospitalization due to my bile duct being blocked by the cyst in the head of my pancreas. I had a stent placed for proper drainage during ERPC. 3 weeks later I was back to the emergency room and had a larger stent placed, followed by 14 days of antibiotics through my pic line to eliminate all the infection in my body. I then began evaluation at Mayo Rochester the first of June and began folfirinox two weeks later at a local oncology center in Missouri. My CA19-9 number shrunk from 13,500 in June to 1753 after 10 rounds of chemo. I am now at Mayo receiving 15 radiation treatments to prepare me for surgery. I am very thankful for my care here. Though I dread the Whipple, I am thankful that I should be a candidate for that surgery.

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thinking of you and wish you the best ..the whipple surgery is the best route to go although the recovery is hard the end result is the best good luck my friend...

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