Pancreatic Cancer Group: Introduce yourself and connect with others

17 months ago, my wife had Whipple surgery for a stage 2b pancreatic cancer. After surgery, she had trouble eating and was put on TPN. Doctors don't like that long term so after about 2 months she was pulled off TPN and put on on on G-tube, J-tube feeding. The tubes were removed 9 months after surgery and she was on her own. She eats fine, but very cautiously and limited. She has lost 50 pounds, skine and bones now.

The problem is that my wife gets these hot pains in her abdomen that result in vomiting. There is no nausea associated with this. Neither the doctors nor we have figured out a correlation, let alone causality, for why this is happening. There doesn't seem to be a connection with what she eats or pills that she take, the episodes seem random. She'll go a week with no vomiting, then have a period of three vomiting episodes on a 15 hour period.

Has anyone else seen this?

How are you doing now? The break from chemo must be nice.

Was diagnosed with stage 2 pancreatic cancer with a full bile duct blockage on June 12,2024. Went into hospital on June22. Had an emergency Whipple surgery on July 1st. Did chemo from September 2024 till March 2025

Thank you! Having the Mayo Pancreatic Cancer support group has been tremendously helpful as a cancer diagnosis feels very isolating and scary. Sincerely and with all my heart, I hope and pray that every one going through this finds the clarity and peace they are looking for.

Such good news! We all love hearing of your good health!!

I have an IPMN in the main duct of the pancreas. It was discovered in 2013 incidental to a kidney stone . I wasnt told about this IPMN until 2022 when I had an abscess of the diverticula. Two doctors I spoke with at the hospital thought it was a benign condition since I'd had it so long. 9 years. I chose to see a GI doc who does feel the Whipple is in my future. I have zero symptoms, very active but I am now having MRI's with contrast every 6 months since 2022.
Have not received a diagnosis of PC.
Otherwise very healthy and active 72 year old.
Is it practical to have this Whipple surgery with no official diagnosis

Hi
71 year old male in Michigan. Diagnosed in Dec 2023 with pancreatic neuroendocrine tumor which had spread to the liver. Had hepatic embolization, lanreotide injections, 6 rounds folfox and 4 sessions PRRT. Most recently had tail of pancreas, spleen and gall bladder removed along with liver ablation. PET scan today shows more liver progression so i'm not feeling too optimistic.

@gamaryanne , Another player targeting KRAS is Elicio Therapeutics.

They have some trials going on for their ELI-xxxx series of drugs:
https://clinicaltrials.gov/search

Hello! and than you for asking!
So far so good, These past months my CT scans have come back uneventful, as well as negative Signatera blood biopsies. I have my next round of CT scans and blood biopsy next week.
I pray and hope that all continues to be normal. In the meantime, I focus on staying active, eating healthy, doing volunteer work at my local hospital, and living with gratitude. I do continue to check daily on this Mayo Pancreatic Cancer group to help with my input and experiences wherever I can help.

What ever happened to you?