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I just got my diagnosis in October 24. Have been on chemo ever since. At first my ca. numbers were going down. They changer my chemo and now my numbers are going up. What to do next?

Discovered a tumor on my pancreas in 2006. Whipple procedure to remove the tumor, the gall bladder, 40% of my pancreas, and reposition the bile duct tube, on January 5th, 2007. Revision of pancreatic Cancer surgery, July 14th 2017.

Hello, diagnosed August 2023, 12 folfirinox, 3 months gemcitabine chemotherapy. Liver metastases were destroyed by ablation operation.
Today it metastasized to the liver again.
I have no pain, I have not lost weight, my daily life continues the same. My doctor said your pancreatic cancer doesn't fit the book. Immunotherapy will start.
Does anyone have any other suggestions for treatment?

Translate : deepl

Hi,
I haven’t posted in a long time. Been over a year and a half since my surgery for pancreatic cancer. NET’S
I still cannot gain weight. Am on Lanriotide for matasis to my liver and lung and lymph nodes.
Taking 9 Freon a day at 36k units each. Anyone have any advice for me?

Hi, my child has stage 4 in the pancreas neuroblastoma cancer i need help ho to treat it ?

Not sure, Colleen, if I am posting in the right place. But 2 new items of interest to my peritoneal cancer (after the Whipple, etc in 2024) have gotten my attention. First, cachexia, also known as wasting syndrome. I keep telling my doctor and PA my weight is dropping significantly (99 to 90 in about 8 months with no chemo involved); I ran across the term cachexia reading my stock Pfizer's recent news--they are working on a drug. In further reading, it fits me frighteningly close. So I am reaching out to our support group to find any help; I realize this is self-diagnosis but I have a problem as I have a good appetite and I never miss a meal or a snack and had gained back about 10 pounds since my Whipple 2 years ago.
The doctors are looking into a bacterial infection in my stool as I do have some chronic diarrhea, like most of us after treatment. But that brings me to Item #2 (appropriate): I now have a "poop test" sent home with me that might indicate a problem. I can only hope this is my problem, but I wonder how many of us in this group have NOT had this type of test which could help immensely if there is a simple solution to chronic diarrhea.
I should have titled this cachexia, but couldn't figure out how to do that. Carrie

Yes, we live in New Jersey.

I was given a prognosis of 2-4 months without treatment and 11 months with treatment end of June 2022. I am still here & we don't discuss how long just how well I am responding to treatment 😉

Please ask them to give you something for the pain. There should be no reason why you are in pain. I also have Oxicodone just in case. I did go just for blood work last week and platelets are now down to only 40. Tomorrow I go for more blood and if the plaetlets are below 78 the will cancel the chemo and start devising something that will not attack the bone marrow that is producing the platelets. I am not afraid of death, nor am I religious, but I know there is something or someone up there who will guide me when the time comes. I wish you well and just listen, listen to you body and speak out.

I'm sorry you have had such a struggle, both with pain and with the knowledge that it can't be cured.

I start chemo and a clinical trial next week. I am stage 4 metastatic to liver and surrounding lymph nodes. I had pain at first and have been living pain free for about 6 weeks. There is no reason for it, but I take every day like this as a gift.

I asked my doctor the same question as to how long I have. She said it is a very individual answer and would not give me a timeline other than to say 6 months if I did nothing. At first, I was a bit miffed that I didn't get a number. But, now having had time to reflect on it, I think I like it this way. Instead of being given a number to aim for, I now have the choice to go on as far as I want.

Having lost a nephew to a car accident, I can say that while it won't be painless for me and for my family, I have the luxury of making sure I am right in this world and everyone in it. I need to be generous with forgiveness and on asking to be forgiven. I watched the biography of Michael J. Fox and a quote has always stuck with me, "With gratitude, optimism is sustainable". I choose to be grateful for as much as I can every day.

I hope this doesn't sound preachy. I maybe have no basis for posting as I have not gone through the chemo yet. I know what my pancan sponsor told me and that was that those that do the best get up even when every part of their body says stay down. I want to be here to hold future grandkids! I wish you only the best. Brad